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I am a member of the other DMD website that has alot of good information. However, I forget the website name and can not find it. Alot of people who were conversing on this forum went there. I know that Boz is very active on this board also. If you have any idea of which board I am speaking of would you please email the address?
I see you've been active on the boards again. I hope that you're getting some clarity about what you're son is facing. This is hard enough knowing what's in store; I can't imagine still not knowing after all this time.
Julie
Take Care,
Naomi