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Frances Maher
  • Male
  • Downs, IL
  • United States
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  • Bernardo A. Iriberri
 

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Frances Maher is attending PPMD's event
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PART 2: Gene Therapy Webinar 9/6 – Nationwide Children's Hospital at Online Webinar - Eastern Time Zone

September 6, 2017 from 2pm to 3pm
This fall, PPMD is presenting a gene therapy webinar series with companies and institutions who are developing therapies for Duchenne that are commonly referred to as gene therapy, including micro-dystrophin and CRISPR/Cas9. The second webinar in this series, taking place on Wednesday, September 6 at 2 PM ET, will…See More
Aug 31
Frances Maher replied to Bernardo A. Iriberri's discussion The FDA and Ataluren (Translarna)
Jun 20, 2016
Frances Maher replied to Bernardo A. Iriberri's discussion The FDA and Ataluren (Translarna)
Jun 20, 2016
Frances Maher replied to Bernardo A. Iriberri's discussion The FDA and Ataluren (Translarna)
Jun 20, 2016
Frances Maher replied to Bernardo A. Iriberri's discussion The FDA and Ataluren (Translarna)
"Dear Mr. Iriberri, I have been trying unsuccessfully to learn how well European boys have done with the Ataluren. I have contacted PTC Therapeutics but am told to have the doctor phone. I only know that the FDA would not review the drug because it…"
Jun 20, 2016
Frances Maher is now a member of PPMD Community
Jun 17, 2016

Profile Information

About me:
I AM THE GRANDMOTHER, MOTHER OF THE DAUGHTER WHOSE SON HAS DUCHENNE, RESULT OF A POINT MUTATION.
Name(s) of child(ren)/individual(s) with Duchenne:
HENRY ULLRICH
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
DOWNS
State:
ILLINOIS

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