Melanie Sunny
  • Female
  • Houston, TX
  • United States
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Melanie Sunny's Discussions

DMD Gene Repair Strategy Takes a Big Step Forward

Started this discussion. Last reply by cheryl cliff Jul 8, 2010. 2 Replies

Researchers report making a 10-fold improvement in a technology that permanently repairs flawed dystrophin genes, giving a real boost to this therapeutic strategy. Highlights:An MDA-supported…Continue

Genzyme continues to work with PTC on Ataluren

Started Jun 29, 2010 0 Replies

Genzyme continues to work with PTC on AtalurenAnnamarie Dillon from Genzyme has sent Action Duchenne this recent update…Continue

Physical Therapy

Started this discussion. Last reply by Melanie Sunny Jun 24, 2010. 6 Replies

My son is 4 years 10 months now and he has been diagnosed with DMD on Oct 8 2009. He has started physical therapy after diagnosis, and he is doing well now. Yesterday his physical therapist told me…Continue

 

Melanie Sunny's Page

Profile Information

Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Houston

Comment Wall (1 comment)

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At 11:09am on June 24, 2010, Laurie Paschal said…
Hi Melanie,
I also live in the Houston area (Montgomery). Not sure if you are aware, but we have a local F.A.C.E.S group in Houston. If you look through the groups here online, you can find the one for South Texas. We'd love to meet you and have you join us at one of our future meetings. If you can give me your email address, I'll add you to our mailing list for future events.

Laurie (mom to Sam, age 7, DMD, exon 50 deletion)
 
 
 

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