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Melanie Sunny
- Female
- Houston, TX
- United States
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Melanie Sunny's Groups
Melanie Sunny's Discussions
The PTC124 (Ataluren) Clinical Trial for Duchenne Muscular Dystrophy: Exploration of the Experiences of Parents, Clinician Researchers, and the Industry Sponsor
Started Aug 17, 2010 0 Replies 0 Favorites
[Reference: http://clinicaltrials.gov/ct2/show/NCT01182324?term=ataluren&rank=10 ] PurposeThe traditional…Continue
DMD Gene Repair Strategy Takes a Big Step Forward
Started this discussion. Last reply by cheryl cliff Jul 8, 2010. 2 Replies 0 Favorites
Researchers report making a 10-fold improvement in a technology that permanently repairs flawed dystrophin genes, giving a real boost to this therapeutic strategy. Highlights:An MDA-supported…Continue
Genzyme continues to work with PTC on Ataluren
Started Jun 29, 2010 0 Replies 0 Favorites
Genzyme continues to work with PTC on AtalurenAnnamarie Dillon from Genzyme has sent Action Duchenne this recent update…Continue
Physical Therapy
Started this discussion. Last reply by Melanie Sunny Jun 24, 2010. 6 Replies 0 Favorites
My son is 4 years 10 months now and he has been diagnosed with DMD on Oct 8 2009. He has started physical therapy after diagnosis, and he is doing well now. Yesterday his physical therapist told me…Continue
Melanie Sunny's Page
Profile Information
- Age(s) of child(ren)/individual(s) with Duchenne:
- 4-6
- City:
- Houston
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I also live in the Houston area (Montgomery). Not sure if you are aware, but we have a local F.A.C.E.S group in Houston. If you look through the groups here online, you can find the one for South Texas. We'd love to meet you and have you join us at one of our future meetings. If you can give me your email address, I'll add you to our mailing list for future events.
Laurie (mom to Sam, age 7, DMD, exon 50 deletion)