I am a single mom of a 9 year old son with DMD. I have known about my son's disease for three years now and am still finding it difficult to cope with. I would greatly appreciate any support and guidance other parents of DMD children can offer me.
About my family:
I have four children, ages 21, 20, 16 and 9, and one grandson who is 1 month old.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
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hello Felicia,we have two sons also w/dmd Tyler would be 13 this year and Spencer is 9, he takes the steriod Deflazacort daily along w supplements like Juven/l-Arginine,Protandim,vit d3,CoQ 10,it has changed us drastically as well and created obstacles in our lives which we are learning daily how to deal with and hopefully overcome.We have their "pop pops" place in the Catskills exit 21 off NY st thruway town of Greenville and Cairo area -the kids love it upstate there but we cant allways get away