Emilia
  • Female
  • Radom
  • Poland
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Emilia's Friends

  • Brooke Lyons
  • Simone & Elias
  • KarstensMom
 

Emilia's Page

Latest Activity

Brooke Lyons left a comment for Emilia
"Hello Emilia, my son has the same 3-30 inframe deletion.  We too were "accidentally" diagnosed.  How are you doing?  How is your sweet boy?"
Mar 5, 2014
Emilia replied to Simone & Elias's discussion Outliers? in the group Outliers - Intermediate between Duchenne & Becker MD
"Is there an older boy with the same mutation?"
Mar 1, 2014
Emilia replied to Simone & Elias's discussion Outliers? in the group Outliers - Intermediate between Duchenne & Becker MD
"My son does not know how to jump, ladders enter yourself and efficiently, getting more talk masseuse comes to us and trying to rub it, if your son speaks well?"
Mar 1, 2014
Emilia replied to Simone & Elias's discussion Outliers? in the group Outliers - Intermediate between Duchenne & Becker MD
"My son was accidentally  diagnosed two months ago, has thickened calf, has trouble climbing stairs but it is independent, has a speech delay, runs, has good muscle tone, no contractures, it normally does not have a protruding chest looks…"
Mar 1, 2014
Emilia replied to Simone & Elias's discussion Outliers? in the group Outliers - Intermediate between Duchenne & Becker MD
"My son was accidentally zdiagnozwany two months ago, has thickened calf, has trouble climbing stairs but it is independent, has a speech delay, runs, has good muscle tone, no contractures, it normally does not have a protruding chest looks healthy…"
Mar 1, 2014
Emilia replied to Simone & Elias's discussion Outliers? in the group Outliers - Intermediate between Duchenne & Becker MD
Feb 28, 2014
Emilia is now a member of PPMD Community
Feb 28, 2014

Profile Information

About my family:
My son Szymon have deletion 3-30 in frame
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Radom

Comment Wall (1 comment)

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At 4:56pm on March 5, 2014, Brooke Lyons said…

Hello Emilia, my son has the same 3-30 inframe deletion.  We too were "accidentally" diagnosed.  How are you doing?  How is your sweet boy?

 
 
 

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