Elliott Barnett
  • Male
  • Tacoma, WA
  • United States
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  • Sharon Hesterlee
 

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Profile Information

About me:
Father of Miles, aged 6 who has DMD and has been in the Phase 3 drisapersin trial.
Name(s) of child(ren)/individual(s) with Duchenne:
Miles
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Tacoma
State:
WA

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At 2:55pm on May 20, 2014, Sharon Hesterlee said…

Hi Elliott--this site usually has multiple research conversations going...there is also a very active FaceBook group called "Actual/Potential Drugs/Supplements used for people with Duchenne" which I think is a closed group.  Let me see how I can get you added there if you aren't already on that site.  And there is also a FaceBook group called "Drisapersen Trial Participants," which you already be on as well, but if not let me know!  Sharon 

 
 
 

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