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Eleanor Carter
  • Female
  • Floral City, FL
  • United States
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Eleanor Carter's Discussions

Walking and DMD

Started Jul 2 0 Replies

Last week my 13 year old son went to camp walking...WALKING. We picked him up and he can't even stand today. I am NOT blaming camp (we LOVE camp!!), but I am wondering, is this how DMD works? Walking…Continue

 

Eleanor Carter's Page

Latest Activity

Eleanor Carter replied to Kirubha Balakumar's discussion IV port for exon 51
"My son has had his port 1 1/2 years and we have not had any issues. In fact, he no longer feels the infusion needle each week."
Jul 2
Eleanor Carter posted a discussion

Walking and DMD

Last week my 13 year old son went to camp walking...WALKING. We picked him up and he can't even stand today. I am NOT blaming camp (we LOVE camp!!), but I am wondering, is this how DMD works? Walking one day and literally can't stand the next?! I am freaking out!! Do we go to doctor tonight? He has a clinic appointment on Wednesday. Please reply with any thoughts.Thank you.See More
Jul 2
Eleanor Carter is now a member of PPMD Community
Jun 19

Profile Information

About me:
Mom, wife, teacher
About my family:
My husband, Todd, and I have 3 children. We live in Central Florida.
Name(s) of child(ren)/individual(s) with Duchenne:
Ricky
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
Floral City
State:
FL

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