"Hi Eddy, did you get any more information on this? We too are thinking of doing this. Creatine seems to be a myostatin inhibitor. Our son was in a clinical trial for myostatin inhibitor "Anti-Myostatin Adnectin…"
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Eddy Rivera
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Eddy Rivera's Discussions
Right to Live by Angel
Started Jan 12, 2017 0 Replies 0 Favorites
Hello everyone, my name is Eddy Santos, my wife is Rosalinda Illescas, and my only son is Ángel, who greets you from Guatemala, I want to share in a very brief way a bit of the history of this Warrior of Light, Angel has 8 years old, he fulfilled them in November of last year, from the age of 3 we noticed that it was very difficult to jump, run, and climb scales, not crawling, from 4 years, our pediatrics told us that his problem was flat feet , But when he was 6 years old, he was diagnosed…Continue
Use of creatinine for DMD
Started Nov 8, 2016 0 Replies 0 Favorites
Good night I have a child with DMD, consult any of you take creatinine, and if it worked for you.Continue
As I give my son Deflazacort?
Started this discussion. Last reply by Eddy Rivera Aug 23, 2016. 2 Replies 0 Favorites
Good night, my son now weighs 24 kilograms grateful if I can recommend what the appropriate amount of daily deflazacort I should give my son, please I need your help. Thank you,Continue
Cuanto debo de dar a mi hijo de deflazacort
Started this discussion. Last reply by Eddy Rivera Aug 23, 2016. 1 Reply 0 Favorites
Good night, my son now weighs 24 kilograms, agradecere if I can recommend what the appropriate amount of daily deflazacort I should give my son, please I need your help. Thank you,Continue
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Profile Information
- About me:
- My name is Eddy Giovanni Santos Rivera, live in the city of Guatemala, I have a steady job that allows me to have what it takes to my family (wife, son, parents and two nieces), born on 20.12.1971, soon will abide 44 years, I like football, I believe and have faith in God the Father, Son and Holy Spirit, as the Virgin Mary, St. Jude and John Paul II; In addition, we married with my wife married 16 years, and I think both have done well so far, we thank God very much.
- About my family:
- I have a beautiful family, a good wife and a super champion son, who is 6 years old and will soon be 7 years as it meets the 13/11 /; My wife is a working person, we married 16 years, and have always worked both in order to give our children what it takes to become good men; But God's plans were different and we present a single child, which infinitely grateful, but unfortunately not plan a special gift, and he was diagnosed Duchenne Muscular Dystrophy, which is what detected the November 10 last year, that is, three days before they were 6 years of life. My wife's parents no longer live, so my son is privileged to still have his two grandparents on father. We like to go out on weekends, and my son is fascinated much natural environments, where you feel free.
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City:
- Guatemala
- State:
- Guatemala
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