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Douglas Sanchez Male Round Rock, TX United States: Favorite

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About me:: Father of two, working to put computer science degree to good use in Operating Systems development...and figure out how to apply to Muscular Dystrophy research now as well.

World Community Grid advocate with GREATLY renewed activity since diagnosis.

The "Help Cure Muscular Dystrophy Phase II" project entered a series of Beta work unit releases as of April 15th, 2009. I have created a team out there that anybody can join. It is very appropriately named "He's My Son" and is now up to 44 members strong and cranking out some serious results across the spectrum. We are now contributing 1 CPU year every 10 days!!!

The total project is estimated to take 1 year 9 months at similar contribution rates as Phase I project. That is 458 Centuries of compute time, so we NEED your help!!!

I selfishly admit I will change my projects to only run HCMD while it is active, but I can do no less as a father.

PLEASE checkout the World Community Grid and consider joining at:

www.worldcommunitygrid.org

If you wish to, you can join my "He's My Son" team after signing up with WCG by following this link:

http://www.worldcommunitygrid.org/team/viewTeamInfo.do?teamId=1Q3M7...

If you have questions or would like assistance setting up, please let me know!

About my family:: Family of four...Married to Michelle and with two children, Deanna (8yr on 4/13/09) and Eric (6yr on 4/7/09).

We received the Duchenne's MD diagnosis for Eric 2/27/09 with a stated exon 17 deletion and have now joined the Muscular Dystrophy family for the upcoming battle.

Name(s) of child(ren)/individual(s) with Duchenne:: Eric

Age(s) of child(ren)/individual(s) with Duchenne:: 4-6

City:: Round Rock, Texas

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Help Cure Muscular Dystrophy Phase II on World Community Grid Update

Posted on April 28, 2010 at 1:47pm 0 Comments 0 Favorites

The HCMD Phase II project on World Community Grid in two weeks, will have run for one full year. Each day world-wide computers are now contributing an average of ~60 CPU years each and every day to this important project. To date volunteers, including my 58 person team, have contributed 16,071 years (160.071 centuries) worth of computation power to this project. This brings the project to roughly 22% completion, so there is still much to be done to… Continue

Help Cure Muscular Dystrophy Phase II on World Community Grid Progress

Posted on September 9, 2009 at 7:55pm 0 Comments 0 Favorites

In three days the HCMD Phase II Project on World Community Grid will have completed 4 full months of computation. As of today, 9/9/09, worldwide volunteers have contributed 4,004 years of computational time to this very important project.

THAT IS AN AMAZING 40 CENTURIES!!!!

The attached chart is somewhat busy and there is detail there that may seem counter-intuitive (easily explained to anyone who wishes to know), but the keys are:

* The trend for… Continue

Help Cure Muscular Dystrophy Phase II Launched on the World Community Grid

Posted on May 12, 2009 at 11:39am 2 Comments 0 Favorites

The long awaited Phase II Research Project for Help Cure Muscular Dystrophy Phase II on World Community Grid began distributing Work Units this morning 5/12/09. I have been waiting anxiously for this launch for months and am very excited that it has finally gone live. I have already tasked my 5 computers, including the powerful machine running 8 simultaneous Research processes, to now only run HCMD2 research until this project completes.

Here is the link to the WCG Research page… Continue

Help Cure Muscular Dystrophy Phase II Nearing Launch on the World Community Grid

Posted on April 27, 2009 at 11:30am 0 Comments 0 Favorites

Excellent news in our ongoing battle that I have been following quite closely...

World Community Grid and researchers supported by Decrypthon, a partnership between AFM (French Muscular Dystrophy Association), CNRS (French National Center for Scientific Research) and IBM are investigating protein-protein interactions for 40,000 proteins whose structures are known, with particular focus on those proteins that play a role in neuromuscular diseases. The database of information produced… Continue

First Visit to Cincinnati Childrens and Doctor Wong

Posted on March 18, 2009 at 9:30pm 3 Comments 0 Favorites

After being told yesterday that it would be August or September before getting Eric into Cincinnati Children's to see Doctor Wong, i got a call today that an opening materialized next week. Flights and hotel are not yet in place, but I told my boss "I am outta here next week!" and got full support to do so.

In order to be affordable at all, I will have to fly out with him on Saturday and tool around Cincinnati for 2 1/2 days prior to the three days of hospital time. We will also have… Continue

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At 8:12am on July 13, 2009, Marian Lamberson said…: p.s. we are in Canada, but my husband is an original Texan, Fort worth area...

At 8:11am on July 13, 2009, Marian Lamberson said…: Hi Douglas, I can certainly relate to all of what you are feeling...sometimes I feel like a freaking animal I am so angry...I have so much i want to share with you, and i will, but as the "new normal" goes on the cat needs to see the vet, so i am on my way out the door, but i will write you soon. hang in there okay.

At 10:49am on July 2, 2009, Marian Lamberson said…: HI Doug, just wanted to drop a line and see how thigns were going. Last time you wrote, it was the initial push..wondering how things are going?
Take care!@!

At 9:06am on April 29, 2009, Donna Taylor said…: CureDuchenne is putting on the 3rd annual Link Up for the Cure golf tournament at Shadowglen in Manor this Saturday, May 2nd. Here's the link if you are interested in playing or if you know of anyone who may be interested.

http://linkupaustin09.eventbrite.com/

Donna

At 1:01pm on March 31, 2009, Julie Hathaway said…: So glad your visit was a success. Tell me about the nada chair for stretching. That is a new term for me. where do you get it? did dr. wong perscribe it? thanks. hope to see you all in atlanta.

At 9:54am on March 31, 2009, Donna Taylor said…: Hope you had a good visit in Cincinnati. They are an amazing group. Please call when you have time. We would love to get together with you guys. 248-2630.
Donna

At 10:54pm on March 30, 2009, Debbie Dupree said…: Hi Douglas! My name is Debbie Dupree. Stefanie Killian mentioned that your son is a new diagnosis here in Texas. My son Ben, as 16 and learning to drive! I hope your trip to Cincinnati was a supportive and knowledgeable visit. I have been taking Ben to see Dr. Wong for 2 years now. We go back in July. Just wanted to introduce myself and let you know we are all here to support you!

At 9:28am on March 20, 2009, Kristin Hiatt said…: I also forgot to mention ... you should contact guest services at the hospital. they can usually get you free / discounted admission to lots of attractions around town (I think they have free passes to the zoo which is really nice but very hilly, of course I'm from Illinois ...) and they can also give you info on discounted rates at lots of hotels. have a safe trip, i hope you'll update us when you get home.

At 11:14pm on March 19, 2009, Leslie Guzman said…: Hi Douglas, by any chance, do you speak spanish? - (because of your last name) - I am Mexican.

Anyway, I know that you will be here in Cincinnati next week. We would love to meet you. We have a very good Zoo, an Aquarium, the Children's Museum (all of them are close to the Hospital). Here is my phone in case you want to call me (513) 765 9416. We will have a family coming from Roumania with a boy with Duchenne staying with us that week. They have a 5 yr old boy. We may be able to ahve dinner one day at home with them as well if you want. Let me know. Kind regards