I am 12 years are old boy suffering from Duchenne MD.I was diagnosed at age 5 when I was schooling and now I cannot walk using a wheelchair full time.I have no friends to talk or play.stay at home whole day with my computer.I hope there will be a cure one day for boys like me.but don't know when ?
About my family:
My parents are very kind to me and they are helping me and love me too much.I have a lovely sister(adopt)she is just only four monts old.I love to see her and talk to her.she will be a kind sister to me.my dad is trying to find a hope for my hopeless lifeeveryday.I love my family.
Name(s) of child(ren)/individual(s) with Duchenne:
Dinuka, you are a strong boy with a loving family. We are all one community and it is wonderful to hear from you and be able to communicate from around the world. I have two boys with DMD, Ross (12) and Finn (9) and we all have incredible challenges ahead. There is hope for all the boys with DMD. Researchers from around the world are getting closer to finding a treatment and I am confident that we will see this treatment in the near future. You can follow the progress of these treatments on line. Are you taking any medication? It would be great to hear from you again. Please feel free to contact at any time. You have many friends around the world Dinuka!
HELLO SAMARAKOON, YOU ALREADY ARE NOT HOPELESS, SIDES THAT A NEAR DAY GOING THE CURE THAT WE ARE WAITING FOR YOU AND OUR CHILDREN, IS VERY GOOD THAT YOU LOVE SO MUCH YOUR PARENTS, THAT GOOD SON YOU ARE, I ALSO I HAVE A SON WITH DUCHENNE AND AS WELL AS YOUR WE HOPED THAT THE CURE COMES SOON. WHILE IT ARRIVES, YOU MUST ENJOY EVERY DAY OF YOUR LIFE ALTHOUGH SOMETIMES YOU DO NOT FEEL SO HAPPY. A HUG AND GOD BLESS YOU. VELIA JOSHUA MOTHER