I'm a researcher with a group at Children's Hospital of Philadelphia (CHOP), and I'm interested in connecting with families of boys with Duchenne's. My colleague Bill Reynolds recently joined the community, and has found his interactions with parents very helpful. Since Ryan posted our short blurb about the focus groups we're conducting, I have received positive responses! So, I thought I should reach out, and learn more from community members...
City:
Philadelphia, PA
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Please let me know if I can help in any way.
Karen
At 10:47pm on February 17, 2009, Bill Reynolds said…
Hi, Diana,
I saw the announcement Ryan put up, and I added a comment to it inviting folks to contact us either here or at your CHOP address.
Bill
At 10:01pm on February 15, 2009, Bill Reynolds said…
Hi, Diana,
Ryan should be putting the announcement for the adolescent group up sometime soon, and you and I can comment when he does to suggest that interested participants follow up with us.
Bill
At 10:02pm on November 30, 2008, Julie Garcia said…
Hi Diana,
I have been in touch with Bill and the group for questions in the past. If I can be of help please let me know.
Take care,
Julie
At 10:57am on October 28, 2008, Paul Johnson said…
Diana,
My wife, Joanna, and I will be down at CHoP on the 12th of November to meet with Lindsay Dorsey to discuss the PTC124 2b trial and to have our son Elliott screened for inclusion. If you want to stop by to meet and discuss your study - that would be fine with us.
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Hi this is David Evans
I am 17 years old and i have Duchenne Muscular Dystrophy. I was wondering if we could keep in contact. I go to (CHOP) for my doctor visits.
leah
You can email me at mdiamond7@cox.net.
Michelle Diamond
Please let me know if I can help in any way.
Karen
I saw the announcement Ryan put up, and I added a comment to it inviting folks to contact us either here or at your CHOP address.
Bill
Ryan should be putting the announcement for the adolescent group up sometime soon, and you and I can comment when he does to suggest that interested participants follow up with us.
Bill
I have been in touch with Bill and the group for questions in the past. If I can be of help please let me know.
Take care,
Julie
My wife, Joanna, and I will be down at CHoP on the 12th of November to meet with Lindsay Dorsey to discuss the PTC124 2b trial and to have our son Elliott screened for inclusion. If you want to stop by to meet and discuss your study - that would be fine with us.