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Denise Bretsik
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Denise Bretsik's Discussions

LAMININ-111 vs. SMT C1100

Started this discussion. Last reply by mehrzad haidari Nov 10, 2012. 1 Reply

Does anyone know more about the difference between these two? Is it just the formula but with the hope for the same results? Should we look into trying to help get funding for this research?This was…Continue

Summit SMT C1100

Started this discussion. Last reply by paul roberts Sep 5, 2013. 49 Replies

Excited to hear about Phase1!!! I understand that they will release more information at the end of the month but does anyone have an idea how long until they get a Phase 2 going?Continue

skipping exon 45

Started this discussion. Last reply by mehrzad haidari Oct 6, 2012. 1 Reply

Hello,My 7 year old son, Evan was diagnosed with Duchenne this past May. He has the deletion of exon 44. We would need a skip of exon 43 or 45.It looks like Sarepta and Prosensa have pre-clinical…Continue

 

Denise Bretsik's Page

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Evan
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Brighton, MI

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At 4:06pm on December 13, 2012,
StaffStephanie Matthes said…

Hi Denise -- Here's the link to our webinar with Summit: http://community.parentprojectmd.org/video/webinar-summit

 
 
 

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