Debra Chiabai
  • Female
  • Ottawa, Ontario
  • Canada
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Debra Chiabai's Friends

  • Ron Kohudic
  • Anup Kalra
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  • Rodney Foster - Sam's Dad
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Debra Chiabai's Discussions

MD Tab

Started this discussion. Last reply by Debra Chiabai Sep 20, 2009. 2 Replies

MD Tab

Started Jul 26, 2009 0 Replies

Vibration Therapy

Started this discussion. Last reply by Debra Chiabai Nov 17, 2008. 10 Replies


Welcome Friend!

Profile Information

About me:
I am very active in the DMD community and love attending the PPMD Conference each summer.
About my family:
I am the mother of 11 year old twins Kate and Alex. Alex has Duchenne Muscular Dystrophy and is enrolled in the GSK Exon Skipping trial in Montreal
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
Ottawa, Ontario

Comment Wall (9 comments)

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At 3:32pm on July 10, 2012, Ron Kohudic said…

Hi Debra,

My name is Ron Kohudic. I work at Siren Interactive, a digital agency in Chicago that is focused on understanding the needs of patients and physicians dealing with rare diseases. I am part of a small group that is doing research in order to develop new technology to help boys with DMD and their parents, caregivers and health care professionals within the community.


Please let us know if you would be willing to speak with one of my colleagues or I in order to help us better understand DMD from your perspective, as well as to better understand your needs or any specific areas that we could potentially assist you in treating boys with DMD.


Please let me know if we can contact you at your convenience.


Thank you for your time and cooperation in this effort.





At 2:42pm on January 20, 2012, Patti Frank said…

Hey Debra,  your kids are very cute.  How is Alex doing?  Kevin is good -- no longer walking but doing lots.  Getting into legoes again lately.  We're working on an accessible house right now and lots of stress and headaches with builder.  We have to fire him but found a great guy to pick up the pieces and hope to be in the house in a few months.  Hard once your son is no longer walking and living in a split level house!  Have chair lifts but the rest of the maneuvering is tough.  Love your dog.  Kevin wants a similar one.  soon as we get in the new house.  take care,  Patti Frank

At 10:47pm on July 26, 2011, Andrea Cleary said…

Hello again Debra,

I just watched you on the MDC Webinar of July 20th. Good job! Do you work or volunteer for MDC (not that volunteering isn't work, you know what I mean) and for how long now? I offered to help the Chapter here in Montreal for the english community (because my french might only serve to confuse people!) but no one has ever answered me. I went to high school with Kevin Harrison (he is younger than me, but who could forget that smile of his). I'm sure you must have met him.

My son's team Super Simon Hogue was one of the top fundraisers for the Walk for Muscular Dystrophy here (I think he was #4 or 5). And we are trying to get the school and community understanding what DMD is. We got a story about Simon published in the town newspaper. We organized the first "HOP for MD" at the boy's school and with the help of some very cool teachers, are going to make it bigger and better next year. We also went on local CTV news and fought successfully  for a second disabled parking permit. I'm not shy anymore about being an advocate for my kids.

Let me know if I can do something with MDC at the National level please.




At 7:14pm on July 26, 2011, Kelly Provenzano said…

Hi Debra:

How are you?  Frank and I were thrilled to hear that Alex was on the GSK trial.  It has been a while since we chatted.  Tory has been on the trial since March in London.  He has just recieved shot  21.  Love the pictures - shoot us off an email sometime and let us know how you are all doing.

Kelly & Frank Provenzano

At 3:36am on December 26, 2009, Julie Garcia said…
Hi Debra,

I am sorry it took me a while to respond. I do not come to this website very often. You can always send an e-mail to me at or contact me on facebook. Are you on facebook? If you are, lets connect there too.

I hope your doctor recieves funding soon for the vibration therapy. Do you know how much money they need? Perhaps an organization can help put with the funding.

Merry Christmas to you and your family. I hope 2010 is a good year for all.

Please take care and stay in touch,

At 8:17am on November 20, 2008, Julie Garcia said…

I do like the piece of this that we can put up photos and know who we are talking too.

I have heard some doctors in California doing some things on vibration therapy and I really should look into it more. So much to do at times.

I hope all is well and looking forward to meeting again soon some time!

Take care,

At 5:34pm on November 17, 2008, Julie Garcia said…
You have a very handsome son!
At 5:33pm on November 17, 2008, Julie Garcia said…
Hi Debra,

I would love to talk more about vibration studies. Is your doctor in Canada?

I am so anxious for a standard of care to be set for our children that I get frustrated. My son will be 17 years old next month.

I hope all is well.

At 7:14pm on October 26, 2008, Marian Lamberson said…
Hi Debra,
Nice to see you here on PPMD...We should get together soon!!

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