Debbie Bowman
  • Female
  • Englewood, CO
  • United States
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Debbie Bowman's Friends

  • Clare Harper
  • Sharon Hesterlee
  • lisa burke
  • Liisa Underwood
  • Pat Furlong
 

Debbie Bowman's Page

Latest Activity


Staff
Pat Furlong and Debbie Bowman are now friends
Feb 23, 2012
Debbie Bowman replied to Rhonda's discussion COQ-10 Dosing
"Hi Lisa, This helps a bunch.  Thank-you!!  I will contact my neurologist if she is ok with us starting on idebenone instead of CoQ10."
Jan 21, 2012
Debbie Bowman replied to Rhonda's discussion COQ-10 Dosing
"Hi Lisa, I was told that CoQ10 and idebenone are pretty much the same thing? Just being made by drug company to be able to approve as a drug rather than a supplement? Not so sure that is completely true. Have you noticed any improvements with the…"
Jan 18, 2012
Debbie Bowman replied to Rhonda's discussion COQ-10 Dosing
"Does anyone have a little guy on CoQ10? Luke is 3 1/2 and 32 lbs. Our neurologist gave us ok to start. She suggested 60 mg? Seems a bit low?"
Jan 18, 2012
Debbie Bowman replied to Veronica E.'s discussion Our Max
"Veronica, I think about you and your family every day.  Praying for peace for all of you.  "
Jan 17, 2012
Debbie Bowman replied to Amrit's discussion Halo Therapeutics' HT-100 Receives FDA's Orphan Designation for Duchenne Muscular Dystrophy
"Well said. Time is so precious, time for our boys is muscle........ The risk of doing nothing is just too big!"
Jan 16, 2012
Debbie Bowman and lisa burke are now friends
Sep 30, 2011
Debbie Bowman commented on Nimi Langer's group Patient Specific Exon Skipping -NOW!
"Does the press release mention how readily available this would be in the US, if they go to clinical trials?"
Sep 27, 2011
Debbie Bowman joined Nimi Langer's group
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Patient Specific Exon Skipping -NOW!

Pushing forward a venture that will concentrate on that. See More
Sep 27, 2011
Clare Harper left a comment for Debbie Bowman
"Hi Debbie,sorry to hear about your son,it is heart breaking.My son was diagnosed last year.The pain will ease and you will start to do your best for your son.There are good days and bad days.There are potentially some great treatments on the horizon…"
Aug 23, 2011

Staff
PPMD left a comment for Debbie Bowman
"Welcome Debbie... We're glad you found the community site. Please do not hesitate to contact PPMD if you or your family need anything: info@parentprojectmd.org or 800-714-5437   Also, if you haven't already, you should consider…"
Aug 23, 2011
Debbie Bowman is now a member of PPMD Community
Aug 23, 2011

Profile Information

About me:
I am a pediatric nurse.
About my family:
My husband is Chad Bowman. We have one son. He was just diagnosed with Duchenne on July 15th by genetic testing. We are trying to move forward in the mist of this pain and fear.
Name(s) of child(ren)/individual(s) with Duchenne:
Luke
Age(s) of child(ren)/individual(s) with Duchenne:
0-3
City:
Englewood, Colorado

Comment Wall (2 comments)

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At 12:59pm on August 23, 2011, Clare Harper said…
Hi Debbie,sorry to hear about your son,it is heart breaking.My son was diagnosed last year.The pain will ease and you will start to do your best for your son.There are good days and bad days.There are potentially some great treatments on the horizon and your son is young.There is a wealth of knowledge on this site and people readily respond to help,you are not alone,take care Clare
At 10:22am on August 23, 2011,
Staff
PPMD
said…

Welcome Debbie... We're glad you found the community site. Please do not hesitate to contact PPMD if you or your family need anything: info@parentprojectmd.org or 800-714-5437

 

Also, if you haven't already, you should consider registering on PPMD's main site, so that we can send you an information packet tailored to parents of boys who have recently been diagnosed:

http://www.parentprojectmd.org/site/Survey?ACTION_REQUIRED=URI_ACTION_USER_REQUESTS&SURVEY_ID=5323

 

 
 
 

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