My husband is Chad Bowman. We have one son. He was just diagnosed with Duchenne on July 15th by genetic testing. We are trying to move forward in the mist of this pain and fear.
Name(s) of child(ren)/individual(s) with Duchenne:
Luke
Age(s) of child(ren)/individual(s) with Duchenne:
0-3
City:
Englewood, Colorado
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Hi Debbie,sorry to hear about your son,it is heart breaking.My son was diagnosed last year.The pain will ease and you will start to do your best for your son.There are good days and bad days.There are potentially some great treatments on the horizon and your son is young.There is a wealth of knowledge on this site and people readily respond to help,you are not alone,take care Clare
Welcome Debbie... We're glad you found the community site. Please do not hesitate to contact PPMD if you or your family need anything: info@parentprojectmd.org or 800-714-5437
Also, if you haven't already, you should consider registering on PPMD's main site, so that we can send you an information packet tailored to parents of boys who have recently been diagnosed:
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StaffPPMD said…
Welcome Debbie... We're glad you found the community site. Please do not hesitate to contact PPMD if you or your family need anything: info@parentprojectmd.org or 800-714-5437
Also, if you haven't already, you should consider registering on PPMD's main site, so that we can send you an information packet tailored to parents of boys who have recently been diagnosed:
http://www.parentprojectmd.org/site/Survey?ACTION_REQUIRED=URI_ACTION_USER_REQUESTS&SURVEY_ID=5323