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Debbie Bowman
- Female
- Englewood, CO
- United States
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Debbie Bowman's Page
Latest Activity
Debbie Bowman replied to Rhonda's discussion COQ-10 Dosing"Hi Lisa,
This helps a bunch. Thank-you!! I will contact my neurologist if she is ok with us starting on idebenone instead of CoQ10.
"
Debbie Bowman replied to Rhonda's discussion COQ-10 Dosing"Hi Lisa,
I was told that CoQ10 and idebenone are pretty much the same thing? Just being made by drug company to be able to approve as a drug rather than a supplement? Not so sure that is completely true. Have you noticed any improvements with the…"
Debbie Bowman replied to Rhonda's discussion COQ-10 Dosing"Does anyone have a little guy on CoQ10? Luke is 3 1/2 and 32 lbs. Our neurologist gave us ok to start. She suggested 60 mg? Seems a bit low?"
Debbie Bowman replied to Veronica E.'s discussion Our Max"Veronica,
I think about you and your family every day. Praying for peace for all of you.
"
Debbie Bowman replied to Amrit's discussion Halo Therapeutics' HT-100 Receives FDA's Orphan Designation for Duchenne Muscular Dystrophy"Well said. Time is so precious, time for our boys is muscle........ The risk of doing nothing is just too big!"
Debbie Bowman posted a status"Our son Luke was diagnosed with DMD in July. He is 3. Anyone in Denver area with a younger guy?"
Debbie Bowman commented on Nimi Langer's group Patient Specific Exon Skipping -NOW!"Does the press release mention how readily available this would be in the US, if they go to clinical trials?"
Debbie Bowman joined Nimi Langer's group
Patient Specific Exon Skipping -NOW!
Pushing forward a venture that will concentrate on that. See More
Clare Harper left a comment for Debbie Bowman"Hi Debbie,sorry to hear about your son,it is heart breaking.My son was diagnosed last year.The pain will ease and you will start to do your best for your son.There are good days and bad days.There are potentially some great treatments on the horizon…"
StaffPPMD left a comment for Debbie Bowman
"Welcome Debbie... We're glad you found the community site. Please do not hesitate to contact PPMD if you or your family need anything: info@parentprojectmd.org or 800-714-5437
Also, if you haven't already, you should consider…"
Profile Information
- About me:
- I am a pediatric nurse.
- About my family:
- My husband is Chad Bowman. We have one son. He was just diagnosed with Duchenne on July 15th by genetic testing. We are trying to move forward in the mist of this pain and fear.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Luke
- Age(s) of child(ren)/individual(s) with Duchenne:
- 0-3
- City and State:
- Englewood, Colorado
- Country:
- USA
Comment Wall (2 comments)
- At 12:59pm on August 23, 2011, Clare Harper said…
- Hi Debbie,sorry to hear about your son,it is heart breaking.My son was diagnosed last year.The pain will ease and you will start to do your best for your son.There are good days and bad days.There are potentially some great treatments on the horizon and your son is young.There is a wealth of knowledge on this site and people readily respond to help,you are not alone,take care Clare
- At 10:22am on August 23, 2011,
StaffPPMD said… Welcome Debbie... We're glad you found the community site. Please do not hesitate to contact PPMD if you or your family need anything: info@parentprojectmd.org or 800-714-5437
Also, if you haven't already, you should consider registering on PPMD's main site, so that we can send you an information packet tailored to parents of boys who have recently been diagnosed:
http://www.parentprojectmd.org/site/Survey?ACTION_REQUIRED=URI_ACTION_USER_REQUESTS&SURVEY_ID=5323
Need help using this community site? Visit Ning's Help Page.
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Events
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Gala Blue Ball
May 26, 2012 at 6:30pm to May 27, 2012 at 1am – Esplanade Hotel, Fremantle
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