DeAnne Friar
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DeAnne Friar's Discussions

Urinary issues with DMD

Started this discussion. Last reply by Mindy Jun 19, 2009. 4 Replies

 

DeAnne Friar's Page

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DeAnne Friar posted photos
Jul 19, 2009

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Kevin and Kyle
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Grand Rapids

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Comment Wall (18 comments)

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At 9:02pm on June 23, 2011, Benjamin Dellay said…

Not sure if you jump on here much but wanted  to let you know that I can't wait to see you and the family at the end of July.  Hope everyone is doing well.

Ben

At 11:20pm on December 28, 2008, Danielle said…
Thanks so much for your wall comment! My first one! I'm new! You have a lovely family! What a perfect picture. I see both your children are young, and my frankie has recently passed away. When Frankie was your son's age I found it very difficult to even think of him loosing abilities, but he gained so much from life, for each thing he couldn't do, he would simply do another, and achieve in the ways he could. If he couldn't ride a bike, he'd get really good with computers etc. There are many challenges, but with positivity and love, you can overcome anything!

Danielle
At 7:20am on November 7, 2008, Benjamin Dellay said…
DeAnne:
Ty is 1 1/2 and is a complete handfull. I am sorry to hear that Kevin is slowing down. We ended up getting Jason a scooter at school to help reduce fatigue. It seems to be working pretty good so far. We finally got Jason approved for some additional services at school through and IEP. Heather is back at another year and it has been a little hectic. We really need to get together again. Sorry that I missed the Golf this year but Heather had her 20 year reunion on the same day. I will be there next year. Let me know what your weekends look like and we can see if we can make a trip up to your house. Talk to you soon.
Ben
At 5:34pm on November 4, 2008, Benjamin Dellay said…
DeAnne:
I just wanted to say a quick high. I am back around in the PPMD community site. Hope all is going well for you and your family. Look forward to talking to you.
Ben
At 9:13am on October 9, 2008, Drew Malone said…
We sure do miss you all. Please give everybody a big hug and kiss!
At 2:34pm on July 24, 2008, Gretchen said…
Hi! Brian and I went to the conference--my third now--and I have to say I was pleased at how the businesses and researchers showed their progress. "Here's what we said last year at the conference, here's what we've done since then, Here's where we hope to be by next year, etc.

I'm so technologically unsavvy it's pitiful, but I'm working on it! ;) Hope all is well with you in Grand Rapids!
At 8:28pm on July 22, 2008,
Staff
Kimberly Galberaith
said…
Hey there... !
I missed you at the conference.... and yes the End Duchenne Prize is moving along. We are going to be able to award it before the end of the year, so that is amazing.

Hoep you are all well and enjoying the summer.Thank you so much for all of your fundriaisng, and support and help...
Talk to you soon
Kim
At 2:28pm on June 28, 2008, Julie Garcia said…
Thanks Deanne,

I hpe you and your husband had a wonderful time together! You have a great family!

Hugs to all!

Julie
At 9:15pm on June 27, 2008, Karen Barnett said…
We are adding onto our house, expanding an already existing bedroom downstairs (it is very small) and putting in a wheelchair accessible bathroom adjoining it. Daniel's bedroom is upstairs. He is still pretty good on stairs but does complain sometimes about climbing them. I carry things up for him a lot and try to do most of his retrieving when he wants something up or down to avoid him going up and down them too much. I will be relieved when he is downstairs - hopefully this fall.
At 1:41am on June 27, 2008, Julie Garcia said…
Hi DeAnne!

I love the family pictures!

Say "hello" to your mother in-law and sister in-law for me!

Take care,

Julie
 
 
 

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