Hi Dawn, I am off for several weeks would love to get together for coffee. I will also reach out to Monique our sons go to the same school and we met at the MDA walk this past year. Please feel free to call me. 978-490-8038.
I live in Lowell. Seth is going to be 10 yrs. old this June. He has DMD and uses a wheelchair. We're trying to find other children in the area for Seth to play with. He's an only child. He is really starting to resent having DMD. I really don't know what to say to him when he asks when it will go away or if he will ever walk again. So if you can relate, I'd love to be able to talk with someone who knows how hard this is.