Posted on November 11, 2013 at 10:23am 0 Comments 1 Favorite
Christopher spent a week at Johns Hopkins Hospital this past week. He has Congestive Heart Failure. I thought we were going to lose him but with prayers from family and friends, he pulled through. He is home and yesterday we had a birthday party at the Crackpot Restaurant in Towson. Christopher had his usual crabcakes. He looked good considering all that he has been through. Keep C. in your prayers.
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Sending prayers to you, your family and Christopher!!
StaffPat Furlong said…
Hi Dawn, Nice to meet you virtually! Please tell me a bit more about Chris and about you. Do you see Kathryn Wagner? Sincerely, Pat
Thanks
I wouldn't give up on looking for someone to come in to play video games even during the winter...that shared interest could lead to doing other things together. It became a whole new connection for my son, and was also a lot of fun.
I hope it works,
Laurie
I'd think about trying a college age kid...interested in same things and take your son on to the College Campus; have the student take him around, or go, too if Christopher wants you to the first time. Check out the book store, or cafeteria or Biology Dept. or Computer Dept.
In our local paper, I found a college student who was home for the summer, giving swimming lessons at home in his mother's pool. I stayed inside once I felt safe (my son had to feel safe, too) , where I could see, but let the two of them work together in the pool.
I had to be creative sometimes to get something going, but I was determined to had other people in their lives... Sometimes it was an education student or one of their cousins. Since we were together so much, and they didn't spend much time with their dad doing what THEY liked to so, I looked especially for guys who were patient and able to let my son take the lead.
It worked pretty well. The guys wanted a garden, so I found a student who worked in the yard and planted, weeded, watered following my son's directions. I think it worked well for all of us. There were some that didn't work out so well...didn't show up...
a pain, but they did some neat things. Some times scouts are looking for a project: making a garden...
My cousin who had DMD lived to be 38.
I've always believed that prevention is an impt key. If they aren't feeling well, we catch it fast...
They had jobs to do at home; when they were older, they could go to summer school or volunteer one day a week (library, child
development center...) "Purpose" has been important, too. Older son completed his MA in Biology and taught part time for his
University until we moved to PA about 2 yrs. ago. Younger son has developed a website documenting the barn we've been
renovating...and making wheel chair accessible.
We always worked to make things they liked to do as accessible as we could.
We had regular adventures...driving 20 min to local mountains day after snow to play (We were all born in Los Angeles area.)
I wonder what they're answers would be.
I hope this answer isn't too long. You got me thinking about it. I've been a single parent for about 20 yrs and have been determined that we would do the kinds of things we all wanted to do. I especially like the "adventures" we've had. That's probably enough for now.
What does your son like to do? Great looking tux!!!
Laurie
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