"We saw on Friday for the first time the new neurologist at CHOPhiladelphia,Over all our son still meintaining about the same since last December,The previous neurologist put him on 9mg of Deflazacort once daily,b/c of non growth issues.Since last…"
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Darren L Wilson
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Deflazacort
Started this discussion. Last reply by djamel fathi on Sunday. 12 Replies 0 Favorites
My son's physician wrote us a prescription for deflazacort and I am looking to touch base with other families that have started their child on this medication. Our son is 10 and he is at the stage…Continue
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Joshua's mom replied to Darren L Wilson's discussion Deflazacort"Joshua has been on Deflazacort for 6 years now. The side effects he's had are ADD/ADHD, hair growth on his back and some stomach aches when he first started the steroids but not after he started his supplements. His strength…"
Trinh Nguyen replied to Darren L Wilson's discussion Deflazacort"Dear Liisa,
Thanks for sharing.
My son is 7 and a half. He started Prednisone for almost one year ago (0.69mg/kg/day) and have increased 3 kgs since then. The weight increases seem to be OK at his age, but his face is getting round. And he shows…"
Darren L Wilson replied to Darren L Wilson's discussion Deflazacort"Thanks for the input Liisa. Darren has be on the med
for 2 months now, and tolerating it well. The side effect
Issue is a bit overwhelming. Your reply has provided me
with alot of information I wasn't aware of. We are
In…"
Donna replied to Darren L Wilson's discussion Deflazacort"We have always ordered from Master's Marketing and have not had any problems."
Ariel Adler replied to Darren L Wilson's discussion Deflazacort"ok thank you so much that was super helpful"
Liisa Underwood replied to Darren L Wilson's discussion Deflazacort"We saw Dr. Julie Parsons at the Children's hospital in Denver, Colorado. "
Ariel Adler replied to Darren L Wilson's discussion Deflazacort"Hi my name is Ariel, What doctor did u see in the US or canada that prescribed this drug to you? Please respond. Thank you.
"
Ariel Adler replied to Darren L Wilson's discussion Deflazacort"Hi my name is Ariel, What doctor did u see in the US or canada that prescribed this drug to you? Please respond. Thank you.
"
Veronica E. replied to Darren L Wilson's discussion Deflazacort"Max has been on Deflazacort for about four months and is doing really well. We noticed a definate increase in strength -- he used to put his hand or elbow on his knees to stand from a sitting position and he rarely does that anymore. He has been…"
Liisa Underwood replied to Darren L Wilson's discussion Deflazacort"Darren,
My son is 6 and he has been on Deflazacort for almost 2 years now. We order from https://www.canadadrugs.com and never had any issues BUT we have a letter from the doctor dealing with customs which is attached. Having a scanner…"
Darren L Wilson posted a discussionDeflazacort
My son's physician wrote us a prescription for deflazacort and I am looking to touch base with other families that have started their child on this medication. Our son is 10 and he is at the stage where simple tasks such as getting up off the floor, and walking up.stairs is basically impossible. I would like to know if anyone had any trouble getting this medication since it is not provided in the U.S. I've been having trouble faxing the prescription as well as communicating with the overseas…See More
Donna commented on Darren L Wilson's blog post Deflazacort"Our son uses deflazacort and has tolerated it very well. We get it from:
http://www.masters-uk.com/medicines/home.php
I've been very happy with their turnaround time. An individual there that I have communicated with a number of…"
Darren L Wilson posted a blog postDeflazacort
I would like to know if they're are any families who have started their child on the steroid deflazacort? As you may know, this drug is not produced in the U.S. It can only be purchased overseas. Our neuromuscular physician prescribed it for our son who has DMD. I'm just curious if anyone has met any logistical challenges trying to procure this medication. We've met challenges in communicating with the medical facility(faxing). I would also like to know how your child is tolerating the…See More
Profile Information
- About me:
- I am a loving father to a very special young boy who has DMD.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Darren M Wilson
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City and State:
- Virginia Beach, Va
- Country:
- USA
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Deflazacort
Posted on November 2, 2011 at 9:03pm 1 Comment 0 Favorites
I would like to know if they're are any families who have started their child on the steroid deflazacort? As you may know, this drug is not produced in the U.S. It can only be purchased overseas. Our neuromuscular physician prescribed it for our son who has DMD. I'm just curious if anyone has met any logistical challenges trying to procure this medication. We've met challenges in communicating with the medical facility(faxing). I would also like to know how your child is tolerating the… Continue
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