Darren L Wilson
  • Male
  • Virginia Beach, VA
  • United States
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Deflazacort

Started this discussion. Last reply by jiasusa5 Nov 15, 2014. 13 Replies

My son's physician wrote us a prescription for deflazacort and I am looking to touch base with other families that have started their child on this medication. Our son is 10 and he is at the stage…Continue

 

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Profile Information

About me:
I am a loving father to a very special young boy who has DMD.
Name(s) of child(ren)/individual(s) with Duchenne:
Darren M Wilson
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
Virginia Beach
State:
Virginia

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Deflazacort

Posted on November 2, 2011 at 9:03pm 1 Comment

I would like to know if they're are any families who have started their child on the steroid deflazacort? As you may know, this drug is not produced in the U.S. It can only be purchased overseas. Our neuromuscular physician prescribed it for our son who has DMD. I'm just curious if anyone has met any logistical challenges trying to procure this medication. We've met challenges in communicating with the medical facility(faxing). I would also like to know how your child is tolerating the… Continue

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