Hello, dear Darlene! My name is Margarita, I live in Ukraine, Kirovograd. I have a son who is ill with Duchenne. He is now 10.5 years old.Doctorsdiagnosed the illnessat the age of6.5. In Ukraine, no onetreats for such children. Therefore, we are forced to travel to Israel each year toseea neurologist. There we had learned howto swim in the pool, ride a horse,dospecial exercises (such asstretching)every day. For 2 years we have been able to stop the disease. But Iwould liketo communicate withtheAmerican parents and doctors whoprobablyknow more about new medicinesor methods for treating this deasies.
As steroids are harmful, the Ukrainian doctors do not know how to carry out preventive measures. As a result the lives of children are at risk if they catch an infectious disease, or any injury or otherwise.Therefore, all these factors reduce our children’s life and its quality. If you have a little free time for me give me please your email.