My husband & children are wonderful. Stress of dealing w/this disease and what it does to my loved ones was getting the best of me and my husband for awhile. I am hoping 2010 is going to be better.
Name(s) of child(ren)/individual(s) with Duchenne:
Steven Schulz
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
Houston, TX
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Hi Darla,
I really enjoyed visiting with you at the Atlanta conference. How is your ankle? We missed you and Stephen at the FACES gathering this past weekend. Sure hope Kris is feeling better.
Hi again, My son(Gustin) wakes up at night every 2-3 hours to be turned. Does your son get uncomfortable and does it get painful for him? We have a craftmatic adjustable bed with a 4inch memory foam on top.
Welcome! My son that has duchenne is 17 and he is also my youngest!! We have 3 other children. I truely understand the stresses of dealing with this disease.
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I really enjoyed visiting with you at the Atlanta conference. How is your ankle? We missed you and Stephen at the FACES gathering this past weekend. Sure hope Kris is feeling better.