We will be going back to Shriner's on Dec. 28 to pick up night splints . My son had surgery for tight heel cords and he has reverted back in just a year and a half so he needs slpints to help stretch his heels back . We do what we have to right !? We went to an MDA walkathon yesterday Sun. Dec. 6 in Brandon Florida and it was great ! Is there any fgundraisers near you ? There are not any real close to our house , Brandon is an hour away from us . Im gonna try to create something around us for 2010 but well see .
We will be at shriners in december. the doctor wants to see if daniels heel cords are still tight and if we need to do surgery. i'm waiting on a call back for shads. the doctor sent the paper work just waiting on mda to send over medical records.
Thank you. I think I will call for a app. at Shands. I have heard a lot of good things. Daniel sees the neuro. at St.Joseph MDA Dr. Fernandez. But his other neuro. that he see I'm not to sure about. She don't have any other kids that she see. He also go to the Shriners in Tampa. We were just there 2 weeks ago. They told me that his heel cords are tight. We have to go back in December to see if they are still tight and if they are she is going to do surgery. He sees Dr.Babu at Spring Hill Regional for cardio., for pulmo. he goes to All Childrens in Tampa I can't think of the Drs. name right now he just started to see him we go back next month. And his primary,pt,ot, and speech are all here in town.
I just noticed you posted on my page - guess i should have check that first. :) It has been a while since i checked it. We should try to meet sometime. We go to the boundless playground in Tally a lot it is a really nice park. Shawn hasn't been since he got his new chair.
Hi Danielle, It is nice to see you joined the Florida families. We live in Alachua, Fl (near Gainesville). My mom lives in Tallahassee and we are up there often. I am a single mom too and my son (Shawn) is 10.
Hi Danielle I am living in Pakistan, and there is no facilities for DMD and BMD patient govement level, please let me know latest information about I am the father of Nabeel Ahmed, The deseas was dignosed when he was 10 years old.
Danielle: Hello. Thank you so much for placing a comment on my wall. My son, Henry, age 7, has DMD. Does your son go to HRES? If so, I think I may have seen him there. Henry goes to HRES as well. Maybe we could meet sometime. Henry is still fairly asymptomatic at this point and is in 2d grade. Would love to hear from you. DEAN
Thanks for contacting me. When do you come to G'ville next? Would love to meet up with you and your son. My cell # is 352-494-4894 and home is 333-7704. How long have you known of your son's DMD? Look forward to hearing from you.