I am 32 years old i just got married on October 15 2011 and everything i do is for my family in may we found out our son has duchenne he is three and its been very hard and alot of travling i want to get invovled with everything for fundraising to help my son and all the other boys with Duchennes i am a very kind hearted women and i will do anything to help my son
About my family:
my family has gotten bigger my husband has two kids Emma and Ethan who are now my step kids and I have Addison who has Duchenne he calls my husband dad cause that is the only dad he know all our family has been so supportof to us and i am so greatful for all our family and friends
Name(s) of child(ren)/individual(s) with Duchenne:
Hi Damien, my son was diagnosed in June he was 3 at the time!
I am in Australia and have found a huge support speaking to other parents.
We have just started Cooper on steroids and Are beginning this scary journey.
Feel free to message me if you would like to!
Welcome Damien! We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.
If you have any questions about Fundraising to help end Duchenne, PPMD staff member Ryan Fischer can help, so don't hesitate to connect with him!
And if you ever need anything else, here is our contact info -- 800-714-5437 - firstname.lastname@example.org
We also hope you consider registering on PPMD's main website if you haven't already. Registering allows us to send you information tailored to parents of boys with Duchenne, e-newsletters, additional web-based research reports, and other information specifically targeted for members of the community.