Dakota Ferrazzi
  • Male
  • Debary, FL
  • United States
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Dakota Ferrazzi's Discussions

Anyone with DMD break femur bone???

Started this discussion. Last reply by Shelly Jul 9, 2016. 1 Reply

I'm 21 years old I broke my femur in January it's been 6 months since surgery i was walking really good before this happened. I can walk now but it's tough because of cramping muscle tightness and…Continue

Exon Skipping for Deletion 3-7???

Started this discussion. Last reply by Donna Taylor Jul 6, 2015. 1 Reply

is there anything on 3-7 ?? haven't seen anything...Continue

anyone 20 years or older with DMD still walking?

Started this discussion. Last reply by Sai Chand. Gurujala Jul 4, 2018. 16 Replies

im 20 years old and still walking yes i do have DMD...i was just wondering is there anyone else my age still walking?Continue

Deflazacort Recall

Started Mar 26, 2015 0 Replies

i heard there is a recall for J021 and J028….i have boxes that say J022 now I'm scared to take them.Continue

Tags: recall, deflazacort, usa, uk, master

 

Dakota Ferrazzi's Page

Latest Activity

Sai Chand. Gurujala replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?
"Hi Donna, How is your Son doing? Still on deflazacort?"
Jul 4, 2018
Sai Chand. Gurujala replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?
"Hi Donna, How is your Son doing? Still on deflazacort?"
Jul 4, 2018
Shannon Cooley replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?
"My brother is 22 and can still walk with 3-7 deletion. He also broke his femur at 13. "
Jul 2, 2018
Bernardo A. Iriberri replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?
"Thank you very much for your answer Dakota. Very inspiring to read your comments."
Aug 4, 2016
Dakota Ferrazzi replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?
"Nope no heal cord surgery. But I broke my femur in January just starting to learn how to walk on my own. I have the same problem with height problem but I'm a bit taller 5'0" feet tall.. My heart and breathing are pretty good also.…"
Jul 28, 2016
Bernardo A. Iriberri replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?
"That's great Dakota!. My son Hernan stopped walking at 16. Did you have heel cord surgery at one point? We chose not to do it but I would like to know if you did and if it worked for you. Sam, deflazacort works for all boys with DMD. My son…"
Jul 28, 2016
Sam replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?
"Dear all reading your posts give me hope that things might not be that worse as i  unfortunately expect , my son is just 2 years old and i was afraid that he will not be able to walk in near future  (hope not). it is first time i hear…"
Jul 28, 2016
Shelly replied to Dakota Ferrazzi's discussion Anyone with DMD break femur bone???
"Fighters always win!!!! God bless !!!"
Jul 9, 2016
Dakota Ferrazzi posted a discussion

Anyone with DMD break femur bone???

I'm 21 years old I broke my femur in January it's been 6 months since surgery i was walking really good before this happened. I can walk now but it's tough because of cramping muscle tightness and tendons don't seem to be healed all the way yet.. How much longer will it take?I'm a fighter I won't give up until I can walk good again.See More
Jul 9, 2016
Michele replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?
"Hi Dakota- So glad to hear that you're still on your feet! My son is almost 10 and is walking (running!) still. I'm wondering if you have any advice for me....because he is almost 10, he is too big for a stroller, but still will get tired…"
May 16, 2016
Megan McGee replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?
"I am eighteen in a month and I was afraid of not being able to walk after 20 but then I saw your post! Thank you just for posting that!"
Sep 19, 2015
jiasusa5 replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?
"Hi, My son Fozaan is 10 yrs old.He is been on daflazacort for 1 year,he is walking right now.Reading your post give me some hope that there are possibilities. Can you share your advice /experience here like how many times in a day you…"
Aug 29, 2015
jiasusa5 replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?
"Hi, My son Fozaan is 10 yrs old.He is been on daflazacort for 1 year,he is walking right now.Reading your post give me some hope that there are possibilities. Can you share your advice /experience here like how many times in a day you…"
Aug 29, 2015
jiasusa5 replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?
"Hi, My son Fozaan is 10 yrs old.He is been on daflazacort for 1 year,he is walking right now.Reading your post give me some hope that there are possibilities. Can you share your advice /experience here like how many times in a day you…"
Aug 29, 2015
Dakota Ferrazzi replied to Mirtha's discussion No steroids ... Any other options?
"i have been on steroids since i was 3 years old.. I'm now 20 years old and still walking… putting your son on steroids and hopefully getting the eteplirsen could allow him to live a normal happy life."
Jul 22, 2015
Moises J. Ramos replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?
"Well the doctors don't know exactly what I have, but I'm still walking. Keep on trucking sir. Remember keep healthy diet, and exercise."
Jul 16, 2015

Profile Information

About me:
im 19 years old i have duchenne md.

i can still walk and run, play sports just trying to keep fighting!
About my family:
my brother and i have duchenne md
Name(s) of child(ren)/individual(s) with Duchenne:
Dakota
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
City:
debary
State:
florida

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