"Hi Donna, How is your Son doing? Still on deflazacort?"
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Dakota Ferrazzi
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- Debary, FL
- United States
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Dakota Ferrazzi's Discussions
Anyone with DMD break femur bone???
Started this discussion. Last reply by Shelly Jul 9, 2016. 1 Reply 0 Favorites
I'm 21 years old I broke my femur in January it's been 6 months since surgery i was walking really good before this happened. I can walk now but it's tough because of cramping muscle tightness and…Continue
Exon Skipping for Deletion 3-7???
Started this discussion. Last reply by Donna Taylor Jul 6, 2015. 1 Reply 0 Favorites
is there anything on 3-7 ?? haven't seen anything...Continue
anyone 20 years or older with DMD still walking?
Started this discussion. Last reply by Sai Chand. Gurujala Jul 4, 2018. 16 Replies 0 Favorites
im 20 years old and still walking yes i do have DMD...i was just wondering is there anyone else my age still walking?Continue
Deflazacort Recall
Started Mar 26, 2015 0 Replies 0 Favorites
i heard there is a recall for J021 and J028….i have boxes that say J022 now I'm scared to take them.Continue
Tags: recall, deflazacort, usa, uk, master
Dakota Ferrazzi's Page
Latest Activity
"Hi Donna, How is your Son doing? Still on deflazacort?"
"My brother is 22 and can still walk with 3-7 deletion. He also broke his femur at 13. "
Profile Information
- About me:
- im 19 years old i have duchenne md.
i can still walk and run, play sports just trying to keep fighting!
- About my family:
- my brother and i have duchenne md
- Name(s) of child(ren)/individual(s) with Duchenne:
- Dakota
- Age(s) of child(ren)/individual(s) with Duchenne:
- 19 or older
- City:
- debary
- State:
- florida
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