Dakota Ferrazzi
  • Male
  • Debary, FL
  • United States
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Dakota Ferrazzi's Friends

  • Nadja
  • Donna Taylor

Dakota Ferrazzi's Discussions

Anyone with DMD break femur bone???

Started this discussion. Last reply by Shelly Jul 9, 2016. 1 Reply

I'm 21 years old I broke my femur in January it's been 6 months since surgery i was walking really good before this happened. I can walk now but it's tough because of cramping muscle tightness and…Continue

Exon Skipping for Deletion 3-7???

Started this discussion. Last reply by Donna Taylor Jul 6, 2015. 1 Reply

is there anything on 3-7 ?? haven't seen anything...Continue

anyone 20 years or older with DMD still walking?

Started this discussion. Last reply by Sai Chand. Gurujala Jul 4, 2018. 16 Replies

im 20 years old and still walking yes i do have DMD...i was just wondering is there anyone else my age still walking?Continue

Deflazacort Recall

Started Mar 26, 2015 0 Replies

i heard there is a recall for J021 and J028….i have boxes that say J022 now I'm scared to take them.Continue

Tags: recall, deflazacort, usa, uk, master

 

Dakota Ferrazzi's Page

Latest Activity

Sai Chand. Gurujala replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?
"Hi Donna, How is your Son doing? Still on deflazacort?"
Jul 4, 2018
Sai Chand. Gurujala replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?
"Hi Donna, How is your Son doing? Still on deflazacort?"
Jul 4, 2018
Shannon Cooley replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?
"My brother is 22 and can still walk with 3-7 deletion. He also broke his femur at 13. "
Jul 2, 2018

Profile Information

About me:
im 19 years old i have duchenne md.

i can still walk and run, play sports just trying to keep fighting!
About my family:
my brother and i have duchenne md
Name(s) of child(ren)/individual(s) with Duchenne:
Dakota
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
City:
debary
State:
florida

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