It has been quite a while since I last posted. My beloved Jarrod W. Parker has since passed away March 12th 2014 at the age of 20. Nathaniel will be 19 on May 20th and we are staying strong and positive; we all have so many challenges to overcome. This has become a lifestyle that teaches us a lot of things about ourselves and I hope if others are struggling with DMD that they are able to find some sort of peace as I have. My journey is far from over
May god bless your beautiful families
Welcome Cynthia- We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.
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