Shannon Cooley
  • Frankfort, IL
  • United States
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  • Moein
  • Donna Taylor

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Shannon Cooley joined Eileen DeLong's group
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Exon Deletion 3-7

Connect with other families with exon deletion 3-7.
Sep 9
Donna Taylor left a comment for Shannon Cooley
"Hi Shannon! So glad to connect with you! Would love to hear how your brother is doing! We are moving Jordan to Dallas tomorrow for his first job out of college. He received a degree in Computer Science from Texas A&M 2 months ago and already has…"
Jul 5
Shannon Cooley replied to Dakota Ferrazzi's discussion anyone 20 years or older with DMD still walking?
"My brother is 22 and can still walk with 3-7 deletion. He also broke his femur at 13. "
Jul 2

Profile Information

About my family:
Brother was originally diagnosed with DMD at birth and has mutation 3-7. Was rediagnosed with BMD based on another muscle biopsy at age 14 from Cincinnati Children’s. Now is 22 and still able to walk as long as not long distance or involves climbing stairs.
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
City:
Frankfort

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At 9:41am on July 5, 2018, Donna Taylor said…

Hi Shannon! So glad to connect with you! Would love to hear how your brother is doing!

We are moving Jordan to Dallas tomorrow for his first job out of college. He received a degree in Computer Science from Texas A&M 2 months ago and already has a job with IBM.

We took him to Italy for his graduation gift. It was interesting getting around but we managed to do it for two weeks!

My email is donna.r.taylor@gmail.com and my cell phone is 512-423-8450. Would love to chat and/or email with you!

Have a great day!

Donna

 
 
 

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