are appropriate for this use. Roy uses a Pulmonetics LTV 800. Pllease send me more info about his Respironics bi-pap--what kind it is according to what it says on the case. Then I will write Louis tonight and try to get you on the way.
Claire--I have to re-read everything and get back to you after I come back from visiting Mom. I would say no you do not want to attach the bi-pap to the back of his chair--you need to get a real LTV--but I will once again ask Louis. I have been going nuts helping people get the LTV and cannot remember who got what info so need to sort it all out. Please do look at all the info you have also, esp that video. It is not so hard to set up and our doc does them al the time of course. Many of Roy's friends use them. I will try to send you Louis' article about which vents
Claire--how is your son doing now? Did you get the LTV successfully mounted? I am so confused about where my answers to you go--my son cannot explain it to me tho he has tried. My son is trying to get his 3rd contract with Microsoft right now--waiting to go on interviews.
Whittier Rehab has a heated pool designed for aquatherapy. It was easy for Pat to move about. He didn't need to worry about falling. The P.T. would stretch him and then play games that would encourage him to use his full range. He had fun and it felt good.
Thanks, it would be nice to discuss what worked for you as far as PT, OT, etc. We are very lucky to have an inground pool at our house. It was part of the reason we chose to buy it (for the DMD). Of course, it's not heated so it's only good about 12 weeks a year, but I understand south shore hospital actually has an indoor pool that they supposedly offer aquatherapy at. Is the benefit more the cardio w/o impact, or just that it's easier to move about?
Hi there. If you're interested there's a "Massachusetts Families" group you can join. I started it to find other MA families. I live in Braintree and my 3 year old Jake has DMD. So far there's only two or three of us in the group, but you're welcome to join us :-)