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Cinni
  • Female
  • Jackson, MI
  • United States
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Cinni's Friends

  • John Beltz
  • Angela Bourgeois
  • Lisa Craw
  • Dan
  • Shelby L. Foster
  • Donna
  • Gregory
  • Jack and Terry Kirley
  • Keith Van Houten
  • Pat Furlong
  • Samantha Dearing
  • Michael
  • Karen Barnett
  • Ryan Fischer

Cinni's Discussions

Resources for the tough questions

Started this discussion. Last reply by Kim S Mar 28, 2014. 6 Replies

Going Back to School Anxiety

Started this discussion. Last reply by Lisa Groeger Aug 21, 2010. 3 Replies

Omega 3-6-9 / Flax Seed Oil / Omega 3 Mood

Started this discussion. Last reply by Cinni Jul 15, 2010. 4 Replies

 

Cinni's Page

Latest Activity

Margarita Yashchenko left a comment for Cinni
"  My name is Marharita. I am from Ukraine. I have a son with DMD. He is 10. I write lerttes to people from different  country. I would like how do they live with this illness. My son have goes to school on the fourth grade . But…"
2 hours ago
Cinni is attending PPMD's event
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[Upcoming Webinar] MoveDMD Trial: Catabasis Provides Update at Online Webinar - Eastern Time Zone

February 2, 2017 from 1pm to 2pm
Thursday, February 2 at 1 PM ET Yesterday the Duchenne community learned that Part B of the MoveDMD trial did not meet its primary endpoint, which was to demonstrate a statistically significant decrease in T2 MRI with edasalonexent after 12 weeks compared to placebo in people affected by Duchenne. There were some potential treatment-associated effects at 12 weeks in the 100 mg/kg/day treatment group when compared to placebo. Therefore, Catabasis will look to see if the signals strengthen in the…See More
Feb 1
Cinni is attending PPMD's event
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[Upcoming Webinar] Mission DMD: FibroGen’s Anti-Fibrosis Program at Online Webinar - Eastern Time Zone

February 1, 2017 from 1pm to 2pm
Wednesday, February 1 at 1:00 PM ET  Please join Parent Project Muscular Dystrophy and FibroGen as we host a webinar Wednesday, February 1 at 1:00 PM ET to discuss FibroGen’s investigational drug Pamrevlumab (FG-3019), which is an anti-CTGF monoclonal antibody, along with FibroGen’s Mission DMD program that is currently being conducted to investigate Pamrevlumab in Duchenne. Specifically, this presentation will provide:The rationale for evaluating Pamrevlumab in Duchenne patientsA description…See More
Jan 26
Cinni replied to Bernardo A. Iriberri's discussion The FDA and Ataluren (Translarna)
"Thanks Ryan :)"
Apr 12, 2016
Cinni replied to Bernardo A. Iriberri's discussion The FDA and Ataluren (Translarna)
"Never mind I read it :)"
Apr 12, 2016
Cinni replied to Bernardo A. Iriberri's discussion The FDA and Ataluren (Translarna)
"What did Ryan post?"
Apr 12, 2016
Cinni commented on PPMD's event 2016 Annual Connect Conference
"Where will the conference be held in Orlando?"
Feb 22, 2016
Cinni is attending PPMD's event
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2016 Annual Connect Conference at Orlando, FL

June 26, 2016 to June 28, 2016
Registration is now open for PPMD's 2016 Connect Conference!Parent Project Muscular Dystrophy's Annual Connect Conference is a unique convergence of industry partners, scientific leaders, medical providers, people living with Duchenne, and their families. This exceptional meeting has grown to be recognized worldwide as the foremost Duchenne muscular dystrophy meeting. But more than…See More
Feb 22, 2016

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Brandon Martz
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
City:
Jackson, MI

Comment Wall (4 comments)

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At 6:52am on September 20, 2017, Margarita Yashchenko said…
 
My name is Marharita. I am from Ukraine. I have a son with DMD. He is 10. I write lerttes to people from different  country. I would like how do they live with this illness. My son have goes to school on the fourth grade . But ukrainians doctors haven`t known how help us. So, just know more and will have community. If will have a impossible so write me about you. My email my-science@ukr.net.     

 

At 11:58pm on March 27, 2009, Dan said…
I am keeping you in my prayers
At 4:56pm on July 17, 2008, Gregory said…
My name is Greg, I am a 38 year old surviver of Duchenne muscular dystrophy. I emailed you because my passion in life is giving support to young adults with (DMD) or other disabilities to live life to the fullest and without boundaries.
I am looking forward to your reply.
At 6:58pm on June 20, 2008, Sara Savalli said…
i love that picture of Brandon.
 
 
 

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