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My name is Marharita. I am from Ukraine. I have a son with DMD. He is 10. I write lerttes to people from different country. I would like how do they live with this illness. My son have goes to school on the fourth grade . But…"
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Cinni
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- Jackson, MI
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Resources for the tough questions
Started this discussion. Last reply by Kim S Mar 28, 2014. 6 Replies 0 Favorites
Going Back to School Anxiety
Started this discussion. Last reply by Lisa Groeger Aug 21, 2010. 3 Replies 0 Favorites
Omega 3-6-9 / Flax Seed Oil / Omega 3 Mood
Started this discussion. Last reply by Cinni Jul 15, 2010. 4 Replies 0 Favorites
Cinni's Page
Latest Activity
Cinni is attending PPMD's event
[Upcoming Webinar] MoveDMD Trial: Catabasis Provides Update at Online Webinar - Eastern Time Zone
February 2, 2017 from 1pm to 2pm
Thursday, February 2 at 1 PM ET Yesterday the Duchenne community learned that Part B of the MoveDMD trial did not meet its primary endpoint, which was to demonstrate a statistically significant decrease in T2 MRI with edasalonexent after 12 weeks compared to placebo in people affected by Duchenne. There were some potential treatment-associated effects at 12 weeks in the 100 mg/kg/day treatment group when compared to placebo. Therefore, Catabasis will look to see if the signals strengthen in the…See More
Cinni is attending PPMD's event
[Upcoming Webinar] Mission DMD: FibroGen’s Anti-Fibrosis Program at Online Webinar - Eastern Time Zone
February 1, 2017 from 1pm to 2pm
Wednesday, February 1 at 1:00 PM ET Please join Parent Project Muscular Dystrophy and FibroGen as we host a webinar Wednesday, February 1 at 1:00 PM ET to discuss FibroGen’s investigational drug Pamrevlumab (FG-3019), which is an anti-CTGF monoclonal antibody, along with FibroGen’s Mission DMD program that is currently being conducted to investigate Pamrevlumab in Duchenne. Specifically, this presentation will provide:The rationale for evaluating Pamrevlumab in Duchenne patientsA description…See More
Cinni replied to Bernardo A. Iriberri's discussion The FDA and Ataluren (Translarna)"Thanks Ryan :)"
Cinni replied to Bernardo A. Iriberri's discussion The FDA and Ataluren (Translarna)"Never mind I read it :)"
Cinni replied to Bernardo A. Iriberri's discussion The FDA and Ataluren (Translarna)"What did Ryan post?"
Cinni commented on PPMD's event 2016 Annual Connect Conference"Where will the conference be held in Orlando?"
Cinni is attending PPMD's event
2016 Annual Connect Conference at Orlando, FL
June 26, 2016 to June 28, 2016
Registration is now open for PPMD's 2016 Connect Conference!Parent Project Muscular Dystrophy's Annual Connect Conference is a unique convergence of industry partners, scientific leaders, medical providers, people living with Duchenne, and their families. This exceptional meeting has grown to be recognized worldwide as the foremost Duchenne muscular dystrophy meeting. But more than…See More
Profile Information
- Name(s) of child(ren)/individual(s) with Duchenne:
- Brandon Martz
- Age(s) of child(ren)/individual(s) with Duchenne:
- 19 or older
- City:
- Jackson, MI
Comment Wall (4 comments)
- At 6:52am on September 20, 2017,
Margarita Yashchenko said… - My name is Marharita. I am from Ukraine. I have a son with DMD. He is 10. I write lerttes to people from different country. I would like how do they live with this illness. My son have goes to school on the fourth grade . But ukrainians doctors haven`t known how help us. So, just know more and will have community. If will have a impossible so write me about you. My email my-science@ukr.net.
- At 11:58pm on March 27, 2009,
Dan said… - I am keeping you in my prayers
- At 4:56pm on July 17, 2008,
Gregory said… - My name is Greg, I am a 38 year old surviver of Duchenne muscular dystrophy. I emailed you because my passion in life is giving support to young adults with (DMD) or other disabilities to live life to the fullest and without boundaries.
I am looking forward to your reply.
- At 6:58pm on June 20, 2008,
Sara Savalli said… - i love that picture of Brandon.
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Events
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PPMD DREAM Dinner & Auction
September 23, 2017 from 5:30pm to 9pm – Greater Tacoma Convention Center
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Coach To Cure MD No Label Brewing Co.
September 23, 2017 from 6pm to 9pm – No Label Brewing Co.
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Holy Mackerel Brewery Event to End Duchenne
September 24, 2017 from 1pm to 4pm – Holy Mackerel Brewery
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Miles for Matthew 5K/10K
September 30, 2017 all day – Greensboro, NC
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