Hi Cindy, my son Jacob is 6 and getting ready to turn 7 on June 30. He is in 1st grade. From your picture, you sure do have a good looking family. The picture I have posted is of Jacob from Easter of 2011. I current live in Hobart, do you still reside in Munster. I am glad to have another DMD family so close. I am so sorry that your family has been impacted by this horrible disease and I hope they find a cure or a way to prolong our sons until the cure is found. Jacobs last CPK was 15,000 and he has a deletion of exons 63-67 which makes it hard for exon skipping but I am hopeful. Since I am a realist, right now the horizon shows little light but we can both hope. Thanks for accepting me as a friend and I hope to share stories and knowledge with each other in regards to our beautiful and wonderful boys. Take care and be strong for Dominick and your family.
It's so nice to hear from you. Chris and I missed you and Dick at the conference. Once the kids get back to school lets try to get together for dinner. It's been too long. How are Dominick and the rest of your crew doing? Tim has been ok lately.
I'm so glad to find your site!!! Are you going to conference? John and I will be there. We've been out of touch for a while but Liam would love to see Dominick, lets get together this summer. Hope all is well!
I will miss you!! I was hoping to see you again. Some times this is the only way to see the good people we have met along the way. You guys are good people I want to stay in touch. I remember too I believe Dick has a sister in the Sacramento area, Rancho Cordova. If you are ever out this way please do stop by. Give my best to Dick.
We are well. Nick completed the 10th grade and has done very well in school.
Did Dominick enjoy camp?
Do stay in touch. I sent an e-mail to what I thought was your sbcglobal.e-mail account.
Wishing you all the best and looking forward to when we see each other in person again.