Donovan is still walking, he was just diagnosed at the end of January, 2008. We are currently seeing Dr. Hayes at Children's here in Seattle. So we are pretty much still trying to educate ourselves and figure out what to do next. The diagnosis is the reason we are moving. Our house has lots of stairs and Donovan's difficulty navigating them this past year is what led us to the actual diagnosis. We haven't had the gene testing done yet and plan to start him on Prednisone shortly. I would love to hear any advice/suggestions you might have. What sort of treatment is your son receiving in Cincinnati? My home email is email@example.com.
We are always up for a play date, etc. Where do you all go for care? We go to Dr. Wong in Cincinnati. I would love to compare notes on what you all are doing to help minimize the DMD. I am a working mom. Is your son still walking? Do you know where on the gene his error is? I am always curious about that. When did you son get diagnosed? Ok - enough quesitons for now.
p.s. email at home firstname.lastname@example.org