Cindy Sorensen
  • Female
  • Seattle, WA
  • United States
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Cindy Sorensen's Friends

  • Marla & Vaughn Tabor
  • Char Burke
 

Cindy Sorensen's Page

Profile Information

Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Seattle, WA

Comment Wall (6 comments)

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At 11:18am on September 6, 2008, Char Burke said…
please join the WA families group. char in Seattle
At 8:18pm on July 21, 2008, Cindy Sorensen said…
Donovan is still walking, he was just diagnosed at the end of January, 2008. We are currently seeing Dr. Hayes at Children's here in Seattle. So we are pretty much still trying to educate ourselves and figure out what to do next. The diagnosis is the reason we are moving. Our house has lots of stairs and Donovan's difficulty navigating them this past year is what led us to the actual diagnosis. We haven't had the gene testing done yet and plan to start him on Prednisone shortly. I would love to hear any advice/suggestions you might have. What sort of treatment is your son receiving in Cincinnati? My home email is bcsorensen@msn.com.

Cindy
At 3:18pm on July 21, 2008, Char Burke said…
We are always up for a play date, etc. Where do you all go for care? We go to Dr. Wong in Cincinnati. I would love to compare notes on what you all are doing to help minimize the DMD. I am a working mom. Is your son still walking? Do you know where on the gene his error is? I am always curious about that. When did you son get diagnosed? Ok - enough quesitons for now.
Char
p.s. email at home charlatte2@comcast.net
At 12:53am on July 21, 2008, Char Burke said…
hi Cindy - We live in Seattle WA too. My son Will will be 6 yrs in two weeks. How old is your son? Char
At 2:16am on July 19, 2008, Char Burke said…
Hi Cindy - We live in Seattle too! We should meet some time. We live near the University - where do you live? Our son is soon to be 6 yrs old.
Char Burke
charlatte2@comcast.net
At 8:46pm on July 11, 2008, Marla & Vaughn Tabor said…
Welcome, Cindy. You will find lots of support and resources on PPMD. It's great! What is the name and age of your child with MD? I would love to hear from you.

Marla
 
 
 

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