Cindy
  • Female
  • Torrance, CA
  • United States
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  • Susan Rathfelder
  • Julie Garcia
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Cindy is attending PPMD's event
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Webinar: Sarepta at Eastern Time Zone

October 17, 2013 from 12pm to 1pm
Sarepta Therapeutics will host a webcast and conference call for the Duchenne community on Thursday, October 17, 2013, beginning at 12:00 p.m., Eastern Time. Chris Garabedian, president and chief executive officer, and Edward Kaye, M.D., chief medical officer, will provide information and answer questions about Sarepta’s Duchenne development program, including current and planned clinical trials, and Let’s Skip Ahead, a new online resource…See More
Oct 15, 2013

Profile Information

About me:
I am a Divorced Mother of two children, Daughter, Tiffany who is 19, son Taylor 16 with DMD/BMD. I love spending time with my family, working in real estate, and helping others.
About my family:
Tiffany (19), Taylor (16). Taylor has a Motorized Wheelchair and is too fast for us to catch him. We have a Maltipoo dog which he loves named Mochi. We are very blessed to have family members and friends who help us. We are looking to connect with other families in California.
Name(s) of child(ren)/individual(s) with Duchenne:
Taylor
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
Torrance, CA

Comment Wall (7 comments)

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At 5:27pm on September 8, 2010, Penny Hauer said…
Hi Cindy we are in El Cajon san diego area Caleb is ten now and we are having a very hard time with walking getting on and off the bus. pt wants him in chair and he is not wanting to do that yet Ist time I have wanted to go some where and cry My older daus who are parents say just make him but my heart says he will make the move when he knows he can no longer do it walk I mean. however he is very determined. I have to look at the skined kness everyday. he was adopted at birth and he is just my hearts love. but as you know watching his little body slow down is I guess I dont have a word for it the heart ack he told the other day that if were not his mom his heart that his heart would not be complete I want to fix everything but omly

god can do that so we pray that He gives us strenght to do what we have to and a cure I have lost the writting so I hope this makes sence hope to hear from you maybe even get together Caleb plays his 360 as soon as he gets home and he just told me that he beat this game can he have another well no they cost to much hopr you understand I dont always heel sorry for my self but love blinds my good sence thank you Penny Hauer
At 4:21am on August 11, 2009, Julie Garcia said…
Hi Cindy,

We are doing well. Nick is 17 and just started his senior year today. School already. Keeps us busy. Do you go to facebook? I am on there more then here nowadays. Perhaps we can stay in touch that way
Please take care,

Julie
At 6:40pm on February 16, 2009, Gregory said…
Please join our San Francisco Bay Area Families group.

Greg
At 2:29pm on September 24, 2008, Susan Rathfelder said…
Hi Cindy,

My name is Susan and I am not too far from you, I am in the Long Beach area. My son Jonathan is 17 and was diagnosed 8 years ago.

Susan
At 8:13am on September 24, 2008, Julie Garcia said…
Cindy, I sent you a request to be a friend so we can send private messages if you like. The friend request will show in your upper right hand corner I believe.

Take care, Julie
At 8:05am on September 24, 2008, Julie Garcia said…
Hi Cindy,

Yes, I attended the conference. I have also been to Washinton DC with Parent Project to ask for funding to help our children. It is the one thing I can control with dmd.

I found PPMD by surfing the internet about 7 years ago. It is a wonderful way to meet other families and learn from one another.

The conferences PPMD has are very informative and you pick up some good resources. I have met some of the best people from PPMD.

Take care,

Julie
At 12:32pm on September 23, 2008, Julie Garcia said…
Hi Cindy!

My son is 16 years old. I hope you find this website of great help. Do join the California families. Hopefully, you will learn of some good resources or be able to add to those resources.

Take care,
Julie
 
 
 

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