We live in St. Augustine Florida. We got the diagnosis at the end of may, and moved to Florida in the middle of June. They diagnosed him at duke, so we thought we'd stay there because it's Duke. Then we decided to try Nemours in Jax, Fl. We are worried because Dr. Smith is a really nice guy, but he's not very proactive, and doesn't seem to have all the facts. I think, Dr. Wong may be our best bet. How old is your son?
Is Laura Case the physical therapist? I think we met her, but haven't seen her yet. My little guy is only three so he's only been to the MDA clinic once. Ryan is also followed at Nemours Children's Clinic in Jacksonville, Fl. I think we're going to keep going to Nemours for the routine visits and try to get in with Dr. Wong in Cinncinnati. We are requesting a muscle biopsy, but Dr. Smith at Duke doesn't want to do it. Do you see Dr. Smith at Duke, or Dr. Massey?
Hi Chuck. We just moved from NC to Florida. Where does your son go to MDA clinic? We are still going to see Dr. Smith at Duke. We are thinking of scheduling an appointment with Dr. Wong in Cinncinnati. I hope you are your family are doing well,