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Christine Piacentino
  • Female
  • Rochester, NY
  • United States
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Christine Piacentino's Discussions

NIH Public access policy made permanent.

Started this discussion. Last reply by Julie Garcia Mar 12, 2009. 2 Replies

Urgent call to action: Defend the NIH Public Access Policy

Started this discussion. Last reply by Christine Piacentino Sep 4, 2008. 2 Replies


Hello - Welcome to Christine Piacentino's page

Latest Activity

Christine Piacentino is attending PPMD's event

2015 Annual Connect Conference at Washington, DC

June 18, 2015 to June 21, 2015
Parent Project Muscular Dystrophy’s Annual Connect Conference is a unique convergence of industry partners, scientific leaders, medical providers, people living with Duchenne, and their families. This exceptional meeting has grown to be recognized worldwide as the foremost Duchenne muscular dystrophy meeting. But more than that, it is a way for families affected by Duchenne to connect with each other. To build support networks. To realize no one is on their own in the fight to end Duchenne.This…See More
Mar 9, 2015
Christine Piacentino shared Mario Damiani's blog post on Facebook
Mar 8, 2015
Rosalie commented on Christine Piacentino's group New York Families
"Hi all I live in Ronkonkoma we are looking for someone in the area Nassau Suffolk queens Brooklyn NYC that does serial casting. We just returned from Cincinnati Childrens and they want Christopher to have serial casting done he has lost over 10…"
Feb 18, 2015
Sharon Wood replied to Christine Piacentino's discussion Location of all the Families in the group New York Families
"Hi Lynn, Are you still in Fort Drum?  My nephew is in Watertown, NY and I would love to know other families of Duchennes patients in that area. Aunt Sharon"
Sep 29, 2014
Sharon Wood joined Christine Piacentino's group

New York Families

Discussion group for families in New York on fundraising events, care, advocacy.See More
Sep 29, 2014
Christine Piacentino is attending PPMD's event

2013 Annual Connect Conference at Baltimore, MD

June 27, 2013 to June 30, 2013
The largest, most comprehensive annual, international conference focused entirely on Duchenne.2013 Annual Connect ConferenceWhen: June 27 - 30, 2013Where: Baltimore, MD at the Baltimore Marriott WaterfrontEarly Bird Registration Deadline: May 28Final Registration Deadline: June 3 Conference RegistrationBefore May 28: $300 /personAfter May 28: $325 /personDeadline: June 3Room ReservationsTo…See More
May 20, 2013
Christine Piacentino joined PPMD's group
Feb 3, 2013
Christine Piacentino's discussion was featured

2013 Advocacy:

Fellow NY Yorkers!  We really need your help to re-authorze the MD care act.  Please read Ryan's blog and click on the survey link to make sure all the the districts are represented in the Packet Drop Off!  Please spread the word and let's make sure all or NY is represented.http://community.parentprojectmd.org/profiles/blogs/is-your-district-represented I have also compiled a list towns that are…See More
Feb 2, 2013

Profile Information

About me:
I grew up in Manchester NH. My NH roots run deep and I visit NE often to see family and friends. I moved to the Rochester NY area in 1990, and still reside in a suburb of Rochester. I have two children. A 23 year old daughter and a 20 year old son with DMD. I have been active with PPMD since 1998.
About my family:
My daughter lives in Cincinnati OH and is working full time.. My son attends college and is majoring in Biology. My son is able to walk around the house and for short distances on level flat surfaces. My son also obtained Eagle Scout rank in Boy Scouts.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older

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Christine Piacentino's Blog

Moments in life.

Posted on August 13, 2012 at 8:21am 0 Comments

I posted a new blog post.  Please view it at:




A Mother's Wisdom!

Posted on May 10, 2012 at 11:30am 0 Comments


Last week I participated in a pod cast called Kitchen Table Conversations with HerSelf First.  I really enjoyed the conversation with Sheila Moeschen, Kathy Kinnett, and Kris Hersom.  It was truly an enlightening conversation! Click here to listen to the Podcast.


As I was preparing for this conversation, I realized that a lot of time is spent focusing on my son. As…


Bubble Gum, Duct Tape, Spit, and Wine!

Posted on May 5, 2012 at 7:41am 0 Comments

For the past month I felt like the old TV show MacGuyver more so than normal or the line from Project Runway, “Make it work!”   At the end of March I finished a five year assignment in Buffalo NY.  I live in Rochester, NY.  For anyone that doesn’t know how far that is, from my home to my office I logged approximately 176 miles…


A little discomfort and joy!

Posted on March 18, 2012 at 1:52pm 0 Comments

Jon’s second semester at college has been rewarding and frustrating.  While Jon is on campus, things are a little easier.  Jon has a power chair that is stored on campus and he can navigate independently.  Jon doesn’t have a power chair yet permanently.   He can still walk and get in and out of a regular car, with a little…


Advocacy is what we can do from home too!

Posted on February 9, 2012 at 5:47pm 0 Comments

My family has made advocacy part of our End Duchenne agenda for many years.  My daughter Kat, Jon, and I have always tried to attend the advocacy conference.  This year Kat and I will attend; but Jon’s college studies will prevent him from attending.  Biology, Analytical Chemistry, and English are taking up his free…


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At 4:33pm on March 19, 2011, kimmy watters said…
 hey christine   how are you, just wanted to say your son is very handsome, and is ny york ready for spring. kimmy watters
At 9:43am on February 28, 2011, Beverly DeVergillo said…

Hi Christine,

I read your blog about Jon and becoming an Eagle Scout and college next year.  Wow, great accomplishments.  My son, Anthony, is also starting college next year and we are in the process of figuring out which college to select.  Have you had any luck with either college funding or personal aide funding while in college?  Anthony will most likely commute to college too (although he would love to stay in a dorm like everyone else).  He is deciding on Computer Science, Software Engineer, or Journalism.  Take care.


At 9:14am on November 10, 2010, Suzanne Desmond said…
Thank you, I will give it a try.
At 12:42pm on November 9, 2010, Suzanne Desmond said…
I'm a comuter idiate. How do I post the Buffalo News Article to the group I started called Western New York Families. Anything you can do to help me would be great.
Thank you,
Suzanne :)
At 2:09pm on November 8, 2010, Suzanne Desmond said…
Hi Christine,
Thank you so much for joining the group I started.

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