Last week I participated in a pod cast called Kitchen Table Conversations with HerSelf First. I really enjoyed the conversation with Sheila Moeschen, Kathy Kinnett, and Kris Hersom. It was truly an enlightening conversation! Click here to listen to the Podcast.
As I was preparing for this conversation, I realized that a lot of time is spent focusing on my son. As…Continue
For the past month I felt like the old TV show MacGuyver more so than normal or the line from Project Runway, “Make it work!” At the end of March I finished a five year assignment in Buffalo NY. I live in Rochester, NY. For anyone that doesn’t know how far that is, from my home to my office I logged approximately 176 miles…Continue
Jon’s second semester at college has been rewarding and frustrating. While Jon is on campus, things are a little easier. Jon has a power chair that is stored on campus and he can navigate independently. Jon doesn’t have a power chair yet permanently. He can still walk and get in and out of a regular car, with a little…Continue
My family has made advocacy part of our End Duchenne agenda for many years. My daughter Kat, Jon, and I have always tried to attend the advocacy conference. This year Kat and I will attend; but Jon’s college studies will prevent him from attending. Biology, Analytical Chemistry, and English are taking up his free…Continue