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Christine McSherry Female Pembroke, MA United States: Favorite

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Program for Siblings

Started this discussion. Last reply by Cheri Gunvalson Apr 28, 2011. 3 Replies 0 Favorites

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About me:: I am mother to Jett - now 14.5 years old, diagnosed in 2001 with DMD. At that time, the Jett Foundation was founded. Since its inception, JF has raised $2 million for research related to treatments/cure. Nearly $1 million allocated specifically to PPMD and Project Catalyst. JF also supports the pediatric neuromuscular clinic by sponsoring a multidisciplinary program with Dr. Brian Tseng at Mass General Hospital, Boston. As a Registered Nurse, I have been able to provide support to the clinic and nationally to families affected by DMD.

JF partners with other organizations with similar missions; PPMD, Cure Duchenne, Charley's Fund, Ryan's Hope, JBs Keys, Romito Foundation, Ryan's Quest, Nash Avery Foundation and many others.

Jett Foundation is excited to launch "JettRide 2010 - The Journey Continues for DMD"...Learn more at www.jettride.org

About my family:: My husband and I have five children; Jordan (17), Stephanie (15), Jett (14), Jackson (13), Tabor (12). As a family we enjoy swimming, skiing, hiking, sailing - we have been fortunate to be involved with many adaptive sports programs to maintain our lifestyle. Our family has always embraced life, despite Jett's diagnosis -- we will continue to work towards our goal of establishing better treatment, quality of life and supporting the future of all affected by DMD.

Name(s) of child(ren)/individual(s) with Duchenne:: Jett

Age(s) of child(ren)/individual(s) with Duchenne:: 13-18

City:: Pembroke, MA

Christine McSherry's Blog

"Care Considerations in Duchenne Muscular Dystrophy" the first ten years...

Posted on October 18, 2011 at 12:30pm 1 Comment 0 Favorites

The Roundtable will provide an invaluable opportunity for parents and family members of boys with Duchenne Muscular Dystrophy to gather with practitioners, researchers, and other parents in an informative and supportive environment. It is our sincere hope that the Roundtable will facilitate an ongoing dialogue amongst the participants and the presenters so that we may achieve optimal care for boys living with Duchenne.

Preview of Presenters:

Elise Townsend, Ph.D.…

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Today's Update from JettRiders

Posted on July 4, 2010 at 10:29am 0 Comments 0 Favorites

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Jett Ride 2010

Posted on July 3, 2010 at 9:59am 0 Comments 0 Favorites

In case you have not heard, Jett Foundation is once again providing an opportunity for siblings, friends, family to "ride for those who can not". Currently we have 12 cross country youth riders, several additional riders that will be doing "legs" or "sections" of the ride and adult chaperones.…

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Pepsi Refresh Contest

Posted on May 24, 2010 at 4:28pm 1 Comment 0 Favorites

Hello All!

Just a reminder to VOTE for Jett Foundation in the Pepsi Refresh Contest! Jett Foundation would like to send proceeds from this contest to ALL the B/DMD specific organizations who help us win!

Jett Foundation would like to collaborate with these organizations and fund important research projects that will bring us closer to a treatment!

Please show us YOUR efforts to collaborate on this endeavor using…

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Thanks!

Posted on February 24, 2010 at 4:44pm 1 Comment 0 Favorites

Keep them coming - I am thrilled to have so much interest in the next JettRide!!!

The first JettRide in 2007 was truly a labor of love. My daughter Jordan did the entire ride, 3,800 miles in 9 weeks, at the ripe old age of 14 and "NO", she was not an athlete of any sort. She had never ridden a bike before that! I really didn't think she could do it - I learned that our kids, our "normal" kids, really have so much to offer when given the chance. They want to help,…

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Comment Wall (9 comments)

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At 9:26pm on March 1, 2010, Renee Azzouz said…: Christine-- I got your message about the 2010 Jett Ride and would be happy to have you send me more information and let me know how we can be helpful. Address is 27845 w 89th Lenexa Ks 66227 (Kansas City area)-- I did go on the web page and see the work you are doing.--THANKS

At 8:51am on February 26, 2010, jenn said…: so i just got your reply, not sure i have your email address, i seem to have one in my book that isn't right, id love to hear your thoughts on the right place to take the boys in maine...the samoset is beautiful, i want to make it a great trip for austin, he hasnt seen a beach in years! we will have possibly all 5 kids, a caregiver and my husband and i, id love to not totally break the bank, but would like a nice relaxing place to play in the sand, and visit some attractions. email me at jennmcnary@yahoo.com, i will have your correct email then. thanks so much, jenn

At 8:41am on February 26, 2010, jenn said…: thanks for the friend request... is the samoset a hotel? i will google it, but it sounds promising! let me know if you have more info, i trust a dmd mom when she says it is accessible, not everyone knows what that really means!

At 11:19am on February 22, 2010, Janine said…: During the Jetride I felt it was important to stop and say thank you to the group. We were able to see them and in Dayton at the NFL Hall of Fame. What a wonderful group of people it was a pleasure to be able to meet them and let them know that I thought what they were doing for Jett, my son, and all the other boys with dmd was appreciated.

At 8:43am on May 7, 2009, Ofelia Marin said…: Hi Christine,

Thank you very much for your very informative message! I agree with you on all the points and I am very, very grateful! I really appreciate all you and Dr. Tseng are doing for our boys! I will be looking for the paper in 3 weeks.

Thank you,
Ofelia

At 10:03pm on May 6, 2009, Ofelia Marin said…: Hi Christine,

Would you be able to give me any more details about the supplements Dr. Tseng studied? Do you know when the paper will appear? I think you mentioned that it was accepted for publication.

Thank you,
Ofelia