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Christina Kramer Female Nampa, ID United States: Favorite

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Started this discussion. Last reply by Mindy Sep 5, 2010. 8 Replies 0 Favorites

Started this discussion. Last reply by Jerry Dallapè Oct 7, 2009. 11 Replies 0 Favorites

Started this discussion. Last reply by irishgirl Aug 18, 2009. 13 Replies 0 Favorites

About me:: I am a mother of a six year old girl and a five year old boy with Duchenne

About my family:: Isaiah was diagnosed June 9, 2008 and we are still trying to figure out where to go from here

At 4:06pm on March 31, 2011, kimmy watters said…: christina, your son is so beautiful mom of six, i do hope that you do have time for you, has it warm up where you are i do so hope the we see sun wa. state.kimmy

At 8:01pm on November 14, 2009, Molly Kostecky said…: Hi Christina,

I realize that you sent me a message back in September - I'm so sorry I haven't responded yet. I haven't got to this site for a long time.

Yes, we see Dr. John Day here in Minneapolis and we really like him. At this point in Luke's disease, we really just check in on a bi-yearly basis - to make sure all is going well. I think Dr. Day is great and very knowledgeable. I would highly recommend him.

I'm not really good at navigating through this site yet, but I can see your kids are darling. If you have anymore questions - let me know.

Molly

At 10:56am on October 6, 2009, Kim said…: Glad to hear your appointment went well. Our next appointment is a week from today on the 13th.

At 5:37pm on October 5, 2009, Kim said…: Hi Christina! I thought I would "stop by" to see how Isaiah's appointment today went. Did you get any snow up there yesterday? We sure did! Hope things are well with your family!

At 11:39pm on September 27, 2009, Kim said…: Hi Christina! We are almost neighbors! We live in Twin Falls! My 4 year old son Tanner was just diagnosed in July. I would love to chat more with you, especially about how you feel about the care you guys recieve there in Boise.
Kim

At 1:40am on September 25, 2009, Marla Swope said…: Hi Christina-
We also see Dr. Flanigan in Salt Lake. That's a two hour drive as opposed to 4 to Boise. Dr. Flanigan told me though at Baylor's MDA clinic in August, that he will be moving to Ohio for a position. He tells me we'll like his replacement. We'll see I guess. How do you like your MDA clinic doctors in Boise? There can be a lot of frustration trying to find a good doctor.
Glad you found PPMD. This is a great forum for support and info. I don't get on here much anymore, but when I do it's always helpful in one way or another. Baylor was diagnosed a week before his 2nd b-day. He is 5 now and in Kindergarten, but he struggles quite a bit with being on a younger cognitive level than the other 5 year olds. We'll probably have to do K again next year. Is Isaiah in school yet? Thank heavens for IEP's!
If you ever want to email me, feel free: marlaswope@yahoo.com
PS-I love the picture of your kids. They're adorable:)

At 6:37pm on September 21, 2009, Misty Lundell said…: We see Richard Flanigan at the University of Utah, he's a great doctor.

At 3:50pm on October 7, 2008, Kari said…: Welcome Christina, to PPMD Community. This is a great place to connect and get support as I am finding out all too well.

At 3:35pm on October 7, 2008, Jennifer Collier said…: Welcome to PPMD, Christina. I have a 3 year old with DMD. He was diagnosed in May. We live in St. Augustine, Florida. I hope you find some support and comfort here. I know I have.
~Jennifer