Christina Kramer
  • Female
  • Nampa, ID
  • United States
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Christina Kramer's Friends

  • Kim
  • Marian Lamberson
  • Susan
  • Colee'
  • Misty Lundell
  • Marla Swope

Christina Kramer's Discussions

what does my son need?

Started this discussion. Last reply by Mindy Sep 5, 2010. 8 Replies

help, Isaiah's doctor doesnt know much

Started this discussion. Last reply by Jerry Dallapè Oct 7, 2009. 11 Replies

Are night splints beneficial?

Started this discussion. Last reply by irishgirl Aug 18, 2009. 13 Replies

 

Christina Kramer's Page

Profile Information

About me:
I am a mother of a six year old girl and a five year old boy with Duchenne
About my family:
Isaiah was diagnosed June 9, 2008 and we are still trying to figure out where to go from here
Name(s) of child(ren)/individual(s) with Duchenne:
Isaiah Kramer
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Nampa, ID

Comment Wall (9 comments)

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At 4:06pm on March 31, 2011, kimmy watters said…
 christina, your son is so beautiful mom of six,  i do hope that you  do have time for you, has it warm up where you are  i do  so hope the  we see sun  wa. state.kimmy
At 8:01pm on November 14, 2009, Molly Kostecky said…
Hi Christina,

I realize that you sent me a message back in September - I'm so sorry I haven't responded yet. I haven't got to this site for a long time.

Yes, we see Dr. John Day here in Minneapolis and we really like him. At this point in Luke's disease, we really just check in on a bi-yearly basis - to make sure all is going well. I think Dr. Day is great and very knowledgeable. I would highly recommend him.

I'm not really good at navigating through this site yet, but I can see your kids are darling. If you have anymore questions - let me know.

Molly
At 10:56am on October 6, 2009, Kim said…
Glad to hear your appointment went well. Our next appointment is a week from today on the 13th.
At 5:37pm on October 5, 2009, Kim said…
Hi Christina! I thought I would "stop by" to see how Isaiah's appointment today went. Did you get any snow up there yesterday? We sure did! Hope things are well with your family!
At 11:39pm on September 27, 2009, Kim said…
Hi Christina! We are almost neighbors! We live in Twin Falls! My 4 year old son Tanner was just diagnosed in July. I would love to chat more with you, especially about how you feel about the care you guys recieve there in Boise.
Kim
At 1:40am on September 25, 2009, Marla Swope said…
Hi Christina-
We also see Dr. Flanigan in Salt Lake. That's a two hour drive as opposed to 4 to Boise. Dr. Flanigan told me though at Baylor's MDA clinic in August, that he will be moving to Ohio for a position. He tells me we'll like his replacement. We'll see I guess. How do you like your MDA clinic doctors in Boise? There can be a lot of frustration trying to find a good doctor.
Glad you found PPMD. This is a great forum for support and info. I don't get on here much anymore, but when I do it's always helpful in one way or another. Baylor was diagnosed a week before his 2nd b-day. He is 5 now and in Kindergarten, but he struggles quite a bit with being on a younger cognitive level than the other 5 year olds. We'll probably have to do K again next year. Is Isaiah in school yet? Thank heavens for IEP's!
If you ever want to email me, feel free: marlaswope@yahoo.com
PS-I love the picture of your kids. They're adorable:)
At 6:37pm on September 21, 2009, Misty Lundell said…
We see Richard Flanigan at the University of Utah, he's a great doctor.
At 3:50pm on October 7, 2008, Kari said…
Welcome Christina, to PPMD Community. This is a great place to connect and get support as I am finding out all too well.
At 3:35pm on October 7, 2008, Jennifer Collier said…
Welcome to PPMD, Christina. I have a 3 year old with DMD. He was diagnosed in May. We live in St. Augustine, Florida. I hope you find some support and comfort here. I know I have.
~Jennifer
 
 
 

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