I'm currently looking into self employment. I love to go to the cabin in summers and usually Florida for a couple weeks in the winter.
About my family:
I'm a mother of 3 boys and 2 stepchildren(m/f). All are in they're teen years! Really, they are great and they get a long much better now than when they were younger. They enjoy their video games and computers. We all love to go to the cabin together.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
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We have a little boy Diego, who is 5 with DMD and he takes Deflazacort (Calcort) - 12 mg daily. We just arrived to Disney in Orlando,Florida and realized that we left his medicine at home!!!!!! I understand he cannot be without Deflazacort more than 24 hours and Diego does not have medicine for tomorrow. By any chance, is your son using Deflazacort? If he is can we buy or borrow any from you?? We are willing to drive and go anywhere to get the medicine and we can replace within 10 days guaranteed. Sorry to bother you wiht this! but are trying to avoid major interruptions for the boys and extendended family due to this...
Thanks for your kind attention to this,
Here is my email and phone number: firstname.lastname@example.org or (513) 765-9416