I'm a busy mom who just wants my children to have successful and fulfilling lives. In many ways, I am thankful for many things Duchenne has brought into my family's lives. It's made my children more compassionate to others. My eldest daughter is a wonderful advocate for those with disabilities, but also for herself. My son is a very loveable guy who loves to spend time with his family. My youngest doesn't know her brother without his wheelchair, so to her he's no different. All of my children are for the most part, happy and kind people, with a great sense of humor. Humor has gotten our family through some tough times.
I'm learning even the small things help raise awareness. Many people doing small things can make a huge difference.
About my family:
My husband, Joe and I have been married for 20 years and have three children, Samantha (20), Joseph (18) and Ashley (12). We live in West Sacramento, CA.
Name(s) of child(ren)/individual(s) with Duchenne:
We are very hopeful that an orgainzaiton such as MDA or PPMD will sponsor a trial using the same techniques using adult stem cells that Ryan went through. Please let me know if you would like more information about Ryan's treatments and I will pass them along....Curt
He is a "boy" he just has to do it differently for however long he has with us♥ Over the years I have had times I was very active then times no so much...not only is Duchenne Progressive so is our grief as parents. If I need time I take it, when I want to reach out I do. The main thing is yes I have bad days like today, crying and wondering how I can love the you know what even more out of my son. He 18 on the 22nd every second, minute, day, month or year is a blessing, I'll take it!