Christena's Page

Registration for this FREE day-long meeting for families is now open! Click here to register. ------In an effort to reach every single family facing a Duchenne diagnosis in the U.S., PPMD is launching a multi-year community experience called the Every Single [One] Tour. Combining each of the pillars that make up PPMD’s mission – To End Duchenne – the Every Single [One] Tour will bring updates on research, advocacy, and…See More

Parent Project Muscular Dystrophy’s Annual Connect Conference is a unique convergence of industry partners, scientific leaders, medical providers, people living with Duchenne, and their families. This exceptional meeting has grown to be recognized worldwide as the foremost Duchenne muscular dystrophy meeting. But more than that, it is a way for families affected by Duchenne to connect with each other. To build support networks. To realize no one is on their own in the fight to end Duchenne.This…See More

Hi all - hubby and I recently adopted a beautiful 2 month old boy with deletions of exons 5-7 (he was tested at birth due to having a biological brother living with DMD).  I know there is so much that we will have to learn along the way, and we have already done so much reading.  We are blesse to have been able to adopt him and he has brought so much joy to so many people already!We have applied for his Social Security card so that his social worker can apply for a state issued medical card. …See More