Chris Roberts
  • Male
  • Cairns, Queensland
  • Australia
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  • Deb Robins
 

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About me:
Alex's dad. I work on Cape York, the north-eastern pointy bit of Australia with Aboriginal people. Born in South Africa, family moved to Australia in 1975.
Name(s) of child(ren)/individual(s) with Duchenne:
Alexander Wilfred Ross Roberts
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Cairns, Queensland

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At 8:36am on December 30, 2009, Deb Robins said…
Go to www.towardsabrighterfuture.org.au for news of our national neuromuscular conference in Sydney, Feb 26-27, 2010. Draft program is online now, including concurrent breakout sessions. Share this update with affected persons and family for whom we have govt monies to offer some assistance to attend if needed. You guys coming to Sydney?
At 4:41am on February 18, 2009, Sharyn Thompson said…
This is for all Australians affected by DMD. The inaugural "The Tour Duchenne" will start in Sydney on March 7th at 7am and will end in Melbourne on March 16 at around 2.30pm.

The riders will start their journey at The Institute for Neuromuscular Research (INMR), based at The Children’s Hospital at Westmead, then make their way via Wollongong, Batemans Bay, down the picturesque south coast of New South Wales, through country Victoria and then onto Melbourne, where they will finish at the National Muscular Dystrophy Research Centre (NMDRC).
 


Our plan is for this to become a huge nationwide event, so we need your support for this initial ride. You can view all the details about the ride and its participants at www.tourduchenne.com.

Please ask everyone you know to support this fantastic cause. Our aim is to raise $1million to go towards finding a cure for this insideous disease. Whilst a cure may be too late for some boys, we can spare future generations from suffering from DMD.

For those people based in Sydney, there is a "Farewell" event at The Cargo Bar on Wednesday, March 4 2009. Admission is $100 and will include food and drink, silent auctions, celebrity host Tom Williams, and guest speakers. There will also be lucky door prizes, and all $100 tickets receive 5 entries into our guessing competition, with some AMAZING prizes. You can see a list of prizes on our website. To buy tickets to this event, please visit the site http://www.mda.org.au/events/tourD/launch.asp.

We need your support, and that of everyone you know. We HAVE to find a cure, we all want our little boys to grow up and be wonderful, happy and healthy adults. We can achieve this by starting here!

Also, if you (or anyone you know) needs to contact me at all, you can reach me on realthomo@hotmail.com or here on PPMD. Any questions at all, I will be able to answer.
 
 
 

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