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Chris Diemler
  • Male
  • Saint Louis, MO
  • United States
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Chris Diemler's Friends

  • Alissa Braga
  • Lacey rivera
  • Mena Shaher
  • Joseph Steven Burr
  • Yvonne Kobayashi
  • Ricki Lewis
  • Amy Hemming
  • Doan Nguyen Xuan
  • Rebecca Nicole Parker
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  • Michelle Stoops
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Chris Diemler's Discussions

Eplerenone

Started this discussion. Last reply by David Jun 11, 2015. 9 Replies

Are there any families on here who's sons are in the eplerenone trial. I was curious if they would share any results they are seeing. I spoke by email with one father and the results to this point…Continue

Policy Forum Comments

Started Dec 16, 2013 0 Replies

I was working and unable to listen to the web cast of this meeting.  Does anyone know what the comments Janet Woodcock made concerning Sarepta's regulatory path?  There is alot in the financial…Continue

FDA & Sarepta

Started this discussion. Last reply by Chris Diemler Jun 5, 2015. 6 Replies

I am disgusted with the FDA's suggestion to Sarepta that they include a placebo group in their next trial.  I wish they could find a way to conduct these trials with out putting our sons through that.Continue

P.E. Class Alternatives

Started this discussion. Last reply by Andrea Cleary Nov 12, 2013. 1 Reply

Hello, my son is 6 years old and in the 1st grade.  They have a P.E. unit coming up which is the physical fitness test.  Does anyone have any ideas they have used to subsitute for a unit like…Continue

 

Chris Diemler's Page

Profile Information

About me:
I am 42 years old. I have been married to my wife for 9 years. We live in St. Louis, Mo.
About my family:
We have 2 kids, Henry andy Lucy. Lucy is 2 and Henry is 5. He was diagnosed with DMD on December 30, 2011
Name(s) of child(ren)/individual(s) with Duchenne:
Henry Diemler
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
St. Louis, Missouri

Comment Wall (14 comments)

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At 2:46am on December 18, 2013, Shandra Peters said…
Hello hru in your family I created this page a year ago jus not familiar yet
At 10:52am on November 18, 2013,
Staff
Pat Furlong
said…

really nice to meet you Chris.   Please feel free to email me directly Pat@parentprojectmd.org

At 9:59pm on November 14, 2013, Ricki Lewis said…

Sure -- but you probably  know more than I do! My email is rickilewis54@gmail.com

At 3:01pm on September 24, 2013, Amy Hemming said…
Hi Chris. I believe we may know each other. I work at the same company as Chuck. Maybe we can meet at a park in the next few weeks with our boys one Saturday?
At 11:28pm on September 4, 2013, Doan Nguyen Xuan said…

Hi Chris, thank you. I am very glad to talk to u. I hope that I could share and gain experience from u in terms of taking care DMD children.

At 2:59pm on July 8, 2013, Rebecca Nicole Parker said…

There hanging in there my older brother is hanging on and being very strong and my little brothers still mobile so that's something to be happy about my moms also being very strong with the whole situation thanks for asking hows your son doing?

At 2:16pm on January 16, 2013, Michelle Stoops said…

Chris, Quinten is doing well. We are approaching the 7 year anniversary of Quinten's diagnoses, so life is about to get crazy busy with our annual/semi annual appointments. He has really been struggling with being board lately. He does not like to go out in the cold, and it is a lot of work to get all bundled up to go outside (not to mention trying to move around in all of those clothes). I need to post, to get some ideas. How is Henry doing?

At 7:23pm on November 29, 2012, Dean Johnson said…
Chris: It is great to get connected. I have 5 kids: Meredith (14), HENRY (11-DMD); Thomas (8); Jack (5); and Madeleine (2). Our Henry was diagnosed at 18 months. He is now a 6th grader. He got a power wheelchair 6 months ago and also has a service dog. Life is very busy and dynamic here in Tallahassee. I look forward to sharing stories and support.
At 6:16pm on November 29, 2012, Steve Beaulieu said…

'Yes, Chris,  I hope so as well, although we all get busy with life and of course our families! Thanks, cheers'

At 8:39am on September 10, 2012, Ambre Grund said…

Thank you so much!

 
 
 

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