Char Burke
  • Female
  • Seattle WA
  • United States
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You must call TODAY to Save Special Ed Fudning

Started Feb 13, 2009 0 Replies

Steroids and dosage amount

Started this discussion. Last reply by Karen Barnett Jan 29, 2009. 16 Replies

 

Char Burke's Page

Profile Information

About me:
I am a mom of a 51/2 year old with DMD. He is the light of our lives. I work for Safeco Insurance as a commercial underwriter. I enjoy having fun with our family, music, gardening, working out, researching, reading.
About my family:
My husband and I both work in Seattle. We think our son is the best! He is the light of our world.
Name(s) of child(ren)/individual(s) with Duchenne:
Will
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Seattle - WA

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Comment Wall (3 comments)

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At 9:10am on August 6, 2008, Laurie Paschal said…
Hi Char & Happy Birthday Will!!

I saw your comment on my blog asking what a jello cake is. It's very yummy and easy to make. Bake one white cake per box instructions. I substitute apple sauce for oil and only use egg whites to reduce fat and cholesterol. Let cake cool. Once cool, poke holes every inch or so all over the cake. Mix 2 packages any flavor jello mix with 2 cups hot water. I use sugar-free jello mix. Pour over cake. Top with cool whip. I use two bowls of the fat-free variety. Place in refrigerator to cool.

My mom has made these for as long as I can remember. She usually uses cherry or strawberry jello. Sam had lime this time around. I think lemon would be very good, too.

Enjoy!!
At 3:03pm on July 21, 2008, Cindy Sorensen said…
Hi Char. Nice to meet you. We currently live in Burien, but just sold our house and are still looking for our next residence so I don't know where we will end up. Our son Donovan is 8 and he has a younger sister who is 5. We should get together for a play date sometime. It's funny how something like a diagnosis can open up the door to meeting so many new families. I must say it is one of the positive 'side effects' of DMD. Let me know if you would like to get together sometime, maybe just meet at a park for a picnic and playtime. Cindy
At 8:09pm on July 9, 2008, Misty VanderWeele said…
Clarification, there are 42 boys across Alaska ages from 1year to 25, from all over, from South east, the villiages, Nome, Soldotna, Anchorage to Fairbanks, Mat-Su valley which includes, Wasilla, Big Lake, Houston, Willow, Palmer, Glenallen, Delta Juntion, Tok. Alaska is the biggest state, but we only have around 3 million total population. So if 1 in 3500 male births has DMD, 42 isn't that many. : ) Our terrain isn't easy, you can't just get in your car and get anywhere you want. There is either water, or mountains in the way. Hope this helps.

Misty
 
 
 

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