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Started this discussion. Last reply by Angela Bourgeois May 20, 2012. 19 Replies 0 Favorites
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After the holidays would be great. I'm hoping to also meet up with some of the other local folks...it would be great to have something were we could all meet each other. Everyone's so busy, especially this time of year! You can email me at email@example.com or call me at (530) 848-4991, any time.
I also work on campus, so I'm pretty much "local" all the time.
My family & I also live (and work) in Davis. It sounds like you are such wonderful, involved grandparents to your grandchildren! I would love to meet you, sometime. My son, Joseph, just turned 13 and was diagnosed 7 years ago. He also sees Dr. MacDonald in Sacramento.
I will be meeting a grandmother in DC who has the same House member as you do. She would like to make contact with you. I tried to call you last week on your cell phone. I will try again later.
I hope all is well.
I love the pictures. I will try to call you later. Lots to talk about. I hope all is well.
The children are beautiful and very lucky to have two very involved grandparents.
I just read your note to all us carrier moms, and wanted to give you a better understanding of CPK for us moms. I have talked to my friend, a research scientist (PH'D)at UCLA for DMD. She is brilliant. Even though us carrier moms have a normal CPK (most often, than not), we can still manifest symptoms in 10-15% of us. In talking to a Neurologist last year at an MDA Summer Camp, we have to have a test for our two X's (since hat is why we are usually protected as we have the extra X where our boys do not. We are X X and they are X Y. If one of our X's is no good, that is where the symptoms come in. Regardless, we must have an echo every 3 - 5 years. Hope this helps some. Thank you for your post. I am so glad to have you here at PPMD Community. You are a blessing.
Your grandson is a sweetie- you are a lucky Grama!
See my page for my story- as my son is nearl;y 32 yrs old.
I am very interested in your weakness and diagnosis as my sister (who is also a carrier) has had some sudden increasing symptoms that need to be diagnosed. Also how did you find and use the Global page on your site?
In health and happiness,
Rebecca in Berkeley
mom to Milo, 8 w/DMD, and Jules, almost 5, w/out
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