Carrie Raap
  • Female
  • Wyoming, MI
  • United States
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  • Jeff Trecha
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Profile Information

About me:
My 13 year old son, Cobey, was diagnosed with Becker's MD 5 years ago. He is still ambulatory, but has a travelscoot for long trecks. I would love to meet others with this disease in my community. It would be great for him to meet other boys going through some of the same struggles he is.
About my family:
16 year old daughter
Name(s) of child(ren)/individual(s) with Duchenne:
Cobey
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
Wyoming, MI

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At 8:07am on July 28, 2011, Jeff Trecha said…

HI Carrie:

My 2 boys have stop codon on Exon 1 (point 3) - very rare.  Dr.'s have told us that it is very mild form. WIll experience aches / pains (which is true) when they are outside in the winter or after lots of excercise outside. My boys have been very blessed.

 Any time you want to talk let me know. my e-mail is jatecha1@charter.net

 
 
 

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