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Carol Keskeny
  • Female
  • Florence, MT
  • United States
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Carol Keskeny's Friends

  • Margarita Yashchenko
  • Jessica Stevens
  • Shellie Buriak
  • Christine Stalling
  • Holly Cahoon
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Carol Keskeny's Page

Latest Activity

Margarita Yashchenko left a comment for Carol Keskeny
"My number mobile phone +380504870457. We can use Viber"
Jan 5
Margarita Yashchenko left a comment for Carol Keskeny
""Hello, Dear Carol! I wrote to you the letter to your email again""
Jan 5
Margarita Yashchenko left a comment for Carol Keskeny
"Hello, Carol! I wrote to you the letter to your email."
Jan 4
Margarita Yashchenko left a comment for Carol Keskeny
"My name is Margarita, I live in Ukraine, Kirovograd. I have a son, who is ill with Duchenne. My name is Margarita, I live in Ukraine, Kirovograd. I have a son, who is ill with Duchenne. He is now 10 years old. Doctors diagnosed the illness at the…"
Dec 10, 2017
Carol Keskeny commented on Dee's group Mom's Cafe
"PS to Jessica, build a roll in shower now, things will be so much easier in the future for you.  "
Apr 2, 2016
Carol Keskeny commented on Dee's group Mom's Cafe
"Dear Jessica, I built a house for my son too and am so thankful I did.  I would do the wider doors, ramps, I even put in extra outlets in his bedroom for various medical equipment.  My email is ckeskeny@gmail.com if you want more…"
Apr 2, 2016
Carol Keskeny commented on Dee's group Mom's Cafe
"Yes, Jessica, the news is devastating and it takes a long time to adjust.  Just know we are a community that will always be here for you.  My son is now 29 years old, they said he would die by 15, but that is not true.  He is an angel…"
Mar 31, 2016
Carol Keskeny commented on Gisel Rivero's group Grief and Loss
"Oh my goodness, Kimberly.  I can not imagine your pain.  My son is also 28.  I know when he was trached 3 years ago and had no voice, I cried everyday for a year but I still have him.  I would be happy to give you my email…"
Mar 4, 2015

Profile Information

About me:
I am the mother of Daniel and I am a school teacher.
Name(s) of child(ren)/individual(s) with Duchenne:
Daniel Marks
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
City:
Missoula, MT

Carol Keskeny's Blog

clothing

Posted on November 28, 2008 at 9:59am 0 Comments

I am desperately looking for a pair of shoes for my 22 year old son with DMD. His foot drop is really bad with his little toe curling underneath his foot. Any advice?

Comment Wall (14 comments)

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At 4:31am on January 5, 2018, Margarita Yashchenko said…

My number mobile phone +380504870457. We can use Viber

At 4:08am on January 5, 2018, Margarita Yashchenko said…

"Hello, Dear Carol! I wrote to you the letter to your email again"

At 2:11am on January 4, 2018, Margarita Yashchenko said…

Hello, Carol! I wrote to you the letter to your email.

At 12:54pm on December 10, 2017, Margarita Yashchenko said…

My name is Margarita, I live in Ukraine, Kirovograd. I have a son, who is ill with Duchenne. My name is Margarita, I live in Ukraine, Kirovograd. I have a son, who is ill with Duchenne. He is now 10 years old. Doctors diagnosed the illness at the age of 6.5.  In Ukraine, no one treats such children. Therefore, we are forced to travel to Israel each year to see a neurologist. There we learned how to swim in the pool, ride a horse, do special exercises (such asstretching) every day. For 2 years we have been able to stop the disease. But last 2 years my son fells woster than it was early. I would like to communicate with the American parents and doctors who probably know more  about new  medicines or methods for treating this condition. My email my-science@ukr.net. If you have a free time write me on my email I wiil wait. 

At 10:08pm on October 4, 2009, Perlita & Gordy Hains said…
hi carol - just ran across ur page & wanted to say HI - I was brought to tears when I read that you never thought you'd see the day your son turned 22. Our Levi just turned 3 and was recently dx w/ DMD - all we want is for him to turn 22, 32, 42, 52 etc. we have great family helping us and PPMD has been amazing. Your son looks so happy. and thaty's all we want for Levi and his 2 older bros who do NOT have DMD. well just want to say HI perlita
At 4:25pm on July 6, 2009, Christine Stalling said…
Carol, thanks for the link to the article about the brain and Duchenne. Did you ever take Daniel to a neuropsych when he was younger? I am thinking about doing so for Cory after reading the article.
At 7:53pm on June 30, 2009, Christine Stalling said…
Hi Carol. Thanks for the link to the article, I look forward to reading it. I am sorry to hear of all your recent troubles. When it rains it pours! Lets talk soon.
At 8:04am on May 5, 2009, Christine Stalling said…
Carol, I would love to meet you--Wednesday would work. This sense of insanity is overwhelming, every step of the way has been frustrating. When Cory started kindergarten there were some problems at school which after trial and error turned out to be Aspergers. Good news, he was set up with an IEP and his school has been really great. He was also toe-walking at 6 so we went to his ped. who sent us to a ped. orth. surgeon. Dx was idiopathic and they casted him. That didn't do much so he suggested surgery, I said no (surgery when dx is idiopathic?). November '08, a teacher's off-the-cuff comment "he walks like one of my MD students" sent me through this latest labyrinth trying to get a dx. One dr. told me to go to a child psych. Finally found MDA through the internet and got a dx in Jan and genetics lab in March. But that is about all they can offer. Many hours of research and I have found very interesting work on the connection btwn autism spectrum and DMD. I just really need to find the best place to take Cory for real help.
At 7:57pm on May 4, 2009, Christine Stalling said…
Oh Carol, thank you so much for writing back. I look forward to talking to you!
At 6:59pm on May 4, 2009, Christine Stalling said…
Hi Carol. I just joined PPMD and was looking for parents of children with DMD in Montana. I live in Missoula and my son Cory is 8 yrs. I thought I should introduce myself here because Paula H. mentioned your name to me. Just wanted to say hello.
 
 
 

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