I am a Grandparent whose beautiful 3 1/2 year Grandson who was diagnosed with DMD 18 months ago. I am finding it hard to come to terms with the hand that has been dealt to him and to us as a family.
About my family:
I have 3 children 2 in Australia and one in the UK. I have only been here 3 1/2 years and am still settling in. The support we have had from the various organisations here in SA has been amazing. There has not been any cases of DMD in our family, most of which have been boys. I am still finding out about DMD, and what it all means.
Name(s) of child(ren)/individual(s) with Duchenne:
Jack Carter Pomeroy
Age(s) of child(ren)/individual(s) with Duchenne:
Port Lincoln, South Australia
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