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CHRISTINA RODRIGUEZ
  • Female
  • ONTARIO, CA
  • United States
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  • Rachel Sedacca-Replogle
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CHRISTINA RODRIGUEZ's Discussions

Assessment request letters regarding O.T. P.T.

Started this discussion. Last reply by Joni Redlich Oct 27, 2011. 4 Replies

 

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CHRISTINA RODRIGUEZ joined PPMD's group
Sep 23, 2016
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Aug 5, 2016
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Aug 5, 2016
CHRISTINA RODRIGUEZ commented on PPMD's group Adolescence (age 7-12)
"Hi, my friend is actually having the same situation as you. Her son is also going into to the 5th at a private school. She decided to hire one of her relatives."
Jun 27, 2016
CHRISTINA RODRIGUEZ favorited PPMD's group Adolescence (age 7-12)
Jun 25, 2014
Michele Perry left a comment for CHRISTINA RODRIGUEZ
"Christina:  We are using an at home teacher right now for our son Chris.  He did not have surgery, but fractured his femur.  We started out with emailing homework, back and forth with some of his teachers (not all were on board with…"
Feb 6, 2013
CHRISTINA RODRIGUEZ commented on MicahsDaddy's group California Families
"Hello, my son, Bryan is about to have a spinal fussion surgery in a couple of weeks. I was trying to set up a home schooling involving a teacher to come out to our home a couple times a week. The school is leaning towards emailing me his…"
Feb 6, 2013

Profile Information

About me:
HI, MY NAME IS CHRISTINA.
About my family:
I HAVE A SON NAMED BRYAN WHO HAS DMD (EXON 17). MY SON IS NOW 13 YEARS OLD AND IN THE 8TH GRADE.
Name(s) of child(ren)/individual(s) with Duchenne:
BRYAN
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
ONTARO
State:
CA

 

 

 

 

 

 

 

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Comment Wall (14 comments)

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At 1:27pm on February 6, 2013, Michele Perry said…

Christina:  We are using an at home teacher right now for our son Chris.  He did not have surgery, but fractured his femur.  We started out with emailing homework, back and forth with some of his teachers (not all were on board with this system), then got home schooling twice a week with an actual teacher.  This seems to work better since the teacher corrects the work right away - I do not have to email back and forth.  The resource teacher actually set this up.  Hope this helps a bit.  Michele  PS  Nice to "meet" you.

At 11:56am on September 27, 2011, cheryl cliff said…
Hi Christina,
somewhere I read you asked where to get deflazacort from. we get ours from Mastersmarketing.com. It's located in the UK but they mail it to you after they receive the rx from your doc. They have an 800 number for US patients but I usually contact them by email. Ask for Julie, she can assist you. Also, you won't want to get too close to running out of deflaz before your next re-order. It can take awhile to ship AND orders sometimes get backlogged just before Christmas since the mail is bogged down. I usually order just before thanksgiving so as not to run out.
At 6:43pm on February 16, 2009, Gregory said…
Please join our San Francisco Bay Area Families group.

Greg
At 10:40pm on August 7, 2008, Polly Sundeen said…
Hi Christina - did you have the IEP yet? How did it go?
Polly
At 10:11am on July 15, 2008, Polly Sundeen said…
Hi Christina,
We live in a different county - but have been going through IEP's for Cole since he was 3 - I would be glad to try and answer any questions you have. It's so hectic once I get home - I know it sounds horrible but I can actually talk easier when I am at work. My work number is: 949-451-5216 and my work email is: psundeen@ivc.edu. I'll be out of the office until about 11 today - but then there the rest of the afternoon until about 5:30.
Polly
At 10:00am on July 9, 2008, Jenny Garofalo said…
Hi Christina,
thanks for watching the video. yes the bike was specially made for Danny and just since starting the Juven has he been able to ride a trike and couple feet of his brothers 2 wheeler with training wheels. We got the bike at the abilities expo in our state by a company named triaid out of maryland. triaid.com worth every single penny to see that smile while he rides.
Jenny
At 8:10pm on July 2, 2008, cheryl cliff said…
Hi Christina
It was great meeting you and your family recently. I just wanted to remind you to contact MDA and find out what they have in storage at their loaner closed...your brother might be happy with a moterized chair.

Sorry I didn't have any straws on hand when you guys were here. Guess what I have a lot of now...

cheryl
At 6:29pm on June 24, 2008, cheryl cliff said…
Please let nick know he won't be the only shy one here! And, he doesn't have to swim if he doesn't want to there might be other stuff he likes or we will just enjoy visiting with him.

cheryl
At 2:56pm on June 23, 2008, MicahsDaddy said…
["On Monday I plan to talk to his doctor and find out. I also took a look at the paper work when he was diagnosed. Under diagnosed it just said DMD."]

Yes, it is a good idea to find out what mutation he has. His doctor should have it in the paperwork he received from the lab that tested your sons blood.

Once you know the mutation, if a trial comes out specific to your sons, then you can decide whether or not to get your son involved.

And, you'll also know that the researchers are working on something that benefits you. It helps your hope.
At 12:17pm on June 22, 2008, cheryl cliff said…
Hi Christina

Can Nick swim? Does he require assistance getting in and out of the pool or jacuzzi? Most of our activities will be in the back yard but there is stuff he can have fun with inside if he prefers. Is he shy? So is Alexander, my son. Let me know what you think will make Nick more comfortable while he is here...hopefully he will have a little fun.

cheryl
 
 
 

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