"I can't offer much help with the state laws/funding, but regarding therapy, the evaluations should happen in the school setting. OT and PT should assess Bryan's mobility and participation during the school day and base…"
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CHRISTINA RODRIGUEZ
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Assessment request letters regarding O.T. P.T.
Started this discussion. Last reply by Joni Redlich Oct 27, 2011. 4 Replies 0 Favorites
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Joni Redlich replied to CHRISTINA RODRIGUEZ's discussion Assessment request letters regarding O.T. P.T.
StaffBrian Denger replied to CHRISTINA RODRIGUEZ's discussion Assessment request letters regarding O.T. P.T.
"Hello Christina,
It is impossible to say specifically why your school is taking the approach it is, yet given school budgets and expenses involved in providing services for students with disabilities it isn't hard to think this may be part of…"
Leeandra Arhdeacon replied to CHRISTINA RODRIGUEZ's discussion Assessment request letters regarding O.T. P.T."Hi Christina, My name is Leeandra.
My son Nicholas is 4 1/2 and we have already had 3 IEP's since his diagnosis last year. I have to agree with Susan, CCS should be giving you services regardless of location or private insurance and they…"
CHRISTINA RODRIGUEZ's discussion was featuredAssessment request letters regarding O.T. P.T.
Hello, my name is Christina. My son Bryan has DMD and he is 9 y/o. He has been in a manual w/c for the past 2 years. I am trying to write an assessment request letter for O.T. and P.T. Can someone please give me ideas on what to write on the letter. He received these service before at his old school. 2 years ago when he started attending the new school they said they could'nt provide those services to him. The reason why was, because he had CCS. Since CCS was located on the school premises,…See More
Susan Rathfelder replied to CHRISTINA RODRIGUEZ's discussion Assessment request letters regarding O.T. P.T."I don't know about the letter writing part, but I am curious as to why your son would not get CCS services just because you have private insurance. We have private insurance and my son still gets some CCS services. We only have a few months…"
CHRISTINA RODRIGUEZ posted a discussionAssessment request letters regarding O.T. P.T.
Hello, my name is Christina. My son Bryan has DMD and he is 9 y/o. He has been in a manual w/c for the past 2 years. I am trying to write an assessment request letter for O.T. and P.T. Can someone please give me ideas on what to write on the letter. He received these service before at his old school. 2 years ago when he started attending the new school they said they could'nt provide those services to him. The reason why was, because he had CCS. Since CCS was located on the school premises,…See More
CHRISTINA RODRIGUEZ posted a status"Hi, I am trying to write an assessment request letter for O.T. and P.T. Can any one please give me ideas on what write on the letter?"
cheryl cliff left a comment for CHRISTINA RODRIGUEZ"Hi Christina,
somewhere I read you asked where to get deflazacort from. we get ours from Mastersmarketing.com. It's located in the UK but they mail it to you after they receive the rx from your doc. They have an 800 number for US patients but I…"
Profile Information
- About me:
- HI, MY NAME IS CHRISTINA.
- About my family:
- I HAVE A SON NAMED BRYAN WHO HAS DMD (EXON 17). MY SON IS NOW 8 YEARS OLD AND GOING TO 4TH GRADE.
- Name(s) of child(ren)/individual(s) with Duchenne:
- BRYAN
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City and State:
- NORWALK, CA
- Country:
- USA
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Comment Wall (13 comments)
- At 11:56am on September 27, 2011, cheryl cliff said…
- Hi Christina,
somewhere I read you asked where to get deflazacort from. we get ours from Mastersmarketing.com. It's located in the UK but they mail it to you after they receive the rx from your doc. They have an 800 number for US patients but I usually contact them by email. Ask for Julie, she can assist you. Also, you won't want to get too close to running out of deflaz before your next re-order. It can take awhile to ship AND orders sometimes get backlogged just before Christmas since the mail is bogged down. I usually order just before thanksgiving so as not to run out.
- At 6:43pm on February 16, 2009,
Gregory said… - Please join our San Francisco Bay Area Families group.
Greg
- At 10:40pm on August 7, 2008,
Polly Sundeen said… - Hi Christina - did you have the IEP yet? How did it go?
Polly
- At 10:11am on July 15, 2008, Polly Sundeen said…
- Hi Christina,
We live in a different county - but have been going through IEP's for Cole since he was 3 - I would be glad to try and answer any questions you have. It's so hectic once I get home - I know it sounds horrible but I can actually talk easier when I am at work. My work number is: 949-451-5216 and my work email is: psundeen@ivc.edu. I'll be out of the office until about 11 today - but then there the rest of the afternoon until about 5:30.
Polly
- At 10:00am on July 9, 2008,
Jenny Garofalo said… - Hi Christina,
thanks for watching the video. yes the bike was specially made for Danny and just since starting the Juven has he been able to ride a trike and couple feet of his brothers 2 wheeler with training wheels. We got the bike at the abilities expo in our state by a company named triaid out of maryland. triaid.com worth every single penny to see that smile while he rides.
Jenny
- At 8:10pm on July 2, 2008, cheryl cliff said…
- Hi Christina
It was great meeting you and your family recently. I just wanted to remind you to contact MDA and find out what they have in storage at their loaner closed...your brother might be happy with a moterized chair.
Sorry I didn't have any straws on hand when you guys were here. Guess what I have a lot of now...
cheryl
- At 6:29pm on June 24, 2008, cheryl cliff said…
- Please let nick know he won't be the only shy one here! And, he doesn't have to swim if he doesn't want to there might be other stuff he likes or we will just enjoy visiting with him.
cheryl
- At 2:56pm on June 23, 2008,
MicahsDaddy said… - ["On Monday I plan to talk to his doctor and find out. I also took a look at the paper work when he was diagnosed. Under diagnosed it just said DMD."]
Yes, it is a good idea to find out what mutation he has. His doctor should have it in the paperwork he received from the lab that tested your sons blood.
Once you know the mutation, if a trial comes out specific to your sons, then you can decide whether or not to get your son involved.
And, you'll also know that the researchers are working on something that benefits you. It helps your hope.
- At 12:17pm on June 22, 2008, cheryl cliff said…
- Hi Christina
Can Nick swim? Does he require assistance getting in and out of the pool or jacuzzi? Most of our activities will be in the back yard but there is stuff he can have fun with inside if he prefers. Is he shy? So is Alexander, my son. Let me know what you think will make Nick more comfortable while he is here...hopefully he will have a little fun.
cheryl
- At 3:07am on June 22, 2008, Polly Sundeen said…
- Hi Christina,
I'm sorry about your son's diagnosis. My son, Cole, is almost 9 and was diagnosed just over 6 years ago. We live in Tustin - which is just North of Irvine off of the 5 fwy. Isn't Santa Fe Springs near La Mirada? My husband lived there until he was in 6th grade and then his family moved out to Riverside. We are hoping to make it to Cheryl's house on the 29th - I hope you can make it out there too.
Take care,
Polly
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