"You might find this older discussion helpful. You are definitely not alone in this experience.
http://community.parentprojectmd.org/forum/topics/leg-cramps
-David"
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Bryan & Cari Sweet
- Halifax, Nova Scotia
- Canada
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Bryan & Cari Sweet's Discussions
Muscle Cramps
Started this discussion. Last reply by David Feb 2. 1 Reply 0 Favorites
Our son is almost 5 and in the last week he has had quad cramps for hours, muscle was hard and tightenend up and then a few days later it happened to his back, muscle around the spine tightenend up…Continue
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Bryan & Cari Sweet posted a discussionMuscle Cramps
Our son is almost 5 and in the last week he has had quad cramps for hours, muscle was hard and tightenend up and then a few days later it happened to his back, muscle around the spine tightenend up for a few hours. Made him uncomfortable, has anyone else experienced this?See More
Bryan & Cari Sweet replied to amit gupta's discussion Dorsi-Lite"We had the samekind of problem with our pair of Night Splints, as well.
We had to get a new pair custom made at the hospital. It only took an hour and they fit 10 times better. Austin got to choose the color of the straps, which…"
Jennifer left a comment for Bryan & Cari Sweet"Hi,
I live in Prince Edward Island and have 3 boys. My youngest, Lucas has DMD and we travel to Halifax to see Dr. Dooley. Who does Austin see?
Jennifer"
Bryan & Cari Sweet replied to Eileen and Peter Kearney's discussion Home modification suggestions"When it comes to the Bathroom what makes more sense to have?
A roll in Shower with a seat or a bathtub?
I am getting ready to build and my son is currently 4 years old. Should we install a Shower or a tub or a shower first than a tub when we…"
Andrea Cleary left a comment for Bryan & Cari Sweet"Bryan and Cari,
my e-mail is mz_cleary@yahoo.ca, if your would like, just send me a note and I will forward to you the Info and Consent forms the trial people had sent me.
Andrea
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Bryan & Cari Sweet replied to Eileen and Peter Kearney's discussion Home modification suggestions"Hi we are also looking to move to or build a more suitable home. We are looking at one house but it only has a single car garage that is 16 feet wide. Is this enough room to fit a van and still have room for the wheelchair…"
Bryan & Cari Sweet commented on PPMD's group Early Years (diagnois-age 6)"my son was 4 this year and he has just recently been trained in the last few months. He would go on the toilet but not all the time. He still wears a pull up to be at night just in case. I think every child is different, I…"
Bryan & Cari Sweet posted a photo
Moon Boots!
Austin in his "moon boots", he wears them every night to bed. Very happy he doesn't mind them!
Bryan & Cari Sweet commented on PPMD's group Deletions"Does anybody know if there is any relation to the amount of exons skipped and how fast the disease progresses?
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Profile Information
- About me:
- Our son Austin was diagnosed with DMD on April 1st 2011, he is 4 years old. Currently takes 12mg of deflazacort daily.
- About my family:
- Have been married for 8 years. Have a 16 year old daughter.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Austin
- Age(s) of child(ren)/individual(s) with Duchenne:
- 4-6
- City and State:
- Halifax Nova Scotia
- Country:
- Canada
Bryan & Cari Sweet's Photos
Comment Wall (2 comments)
- At 7:20pm on July 19, 2011, Jennifer said…
Hi,
I live in Prince Edward Island and have 3 boys. My youngest, Lucas has DMD and we travel to Halifax to see Dr. Dooley. Who does Austin see?
Jennifer
- At 5:27am on June 6, 2011,
Alana Sedevcic said… Hi Bryan,
I see you have recently received a diagnosis for Austin. I'm sorry to hear your news but want to welcome you to the community. I received a diagnosis of Duchenne for my son Ryan age 4 about 18 mths ago, I live in Australia. Please feel free to msg me anytime.
Alana.
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