Angie Evans
  • Female
  • Markham
  • Canada
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Angie Evans's Friends

  • cercel alexandra silvia
  • Andrea Cleary
  • Tina & Darren Harris
  • Jamie M.
  • Andrew Kerr
  • Jason G
  • Donna Cicardo
  • baljit kaur
  • Joshua's mom
  • Sharyn Thompson
  • Vee Lail
  • Mindy

Angie Evans's Discussions

prevalence of each genetic mutation

Started this discussion. Last reply by Julie Gilmore Dec 9, 2009. 35 Replies

There is such exciting news lately about the gains made in treatments for DMD. I attended the conference hosted by Action Duchenne in London a few weeks ago and heard representatives speak from AVI,…Continue


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About me:
Mother of two sons aged 12 and 15 who were coincidentally born on the same day, three years apart. I teach grade 6 in Markham, Ontario, Canada. I love the summer and basically try to dodge the winter, but that is a little difficult given my location. :) In the summer I enjoy golfing and swimming. I like to read and to travel and to spend time with family and friends. Laughing is a favourite past-time and the odd glass of wine is enjoyable too. :) I have a particular interest in advocacy for DMD in our country. I do not even know where to begin but hope to at least have some kind of central website or FB group or something where all Canadian families can turn to for help, support, advice and a reminder that they are not alone.
About my family:
A happy family with a teenager and a 12-year-old. Our youngest, Sean, was diagnosed with DMD at 5 years of age. He is now dependent on a power chair. We try to take one day at a time. And we never give up hope that one day a better treatment or a cure will be found for this most unwelcome entity in our family - duchenne muscular dystrophy.
Name(s) of child(ren)/individual(s) with Duchenne:
Sean Evans
Age(s) of child(ren)/individual(s) with Duchenne:
Markham, Ontario

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Angie Evans's Blog

Life on Wheels

Posted on January 17, 2012 at 8:37pm 2 Comments

(copied from my personal blog)


So often I learn about some new obstacle that a person in a wheelchair faces. Not that I use a wheelchair. But my son does. He has duchenne muscular dystrophy. He was diagnosed at 5. Before that time we lived in the cozy, luxurious world of what we thought was good health. Sure he fell sometimes. He had trouble walking up the stairs. But surely whatever was causing such a thing couldn't be that serious. Could it? I read once of a bereaved father…


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At 10:23pm on January 20, 2012, Joshua's mom said…

I started here on PPMD.  The PPMD family started to become the DMD family on Facebook.  We all are in the same fight.  It makes our world feel a little bit smaller...

At 9:45pm on January 20, 2012, Joshua's mom said…

I just sent you 50 suggestions to get started...  Enjoy!

At 9:18pm on January 20, 2012, Joshua's mom said…

Thanks for the add.  I sent you a request on Facebook. Thanks for accepting!  If you would like to look for more DMD friends on Facebook, I can send you suggestions.

At 7:19pm on March 31, 2010, Tina & Darren Harris said…
Hay Tina Harris is now on face book
this is her email
hope to see you there
At 4:57am on January 11, 2010, Tina & Darren Harris said…
Helo Angie, how are you going ? i bet you and sean are getting ready for the big 10 hay. tyran is so happy . we will be having all the family over and we always have a big ice cream cake. tyran loves his lego so we have got him a heap of that and from his brother and sister he is getting a game for his PSP that he got for xmas. chat to you more on the 13th tina
At 10:58pm on December 22, 2009, Tina & Darren Harris said…
H i Angie, We hope you have a Happy christmas and all the best to you and your family in 2010 .
Tina,Darren,Tyran,Marshall &Hannah-Lee Harris.
At 8:08pm on December 21, 2009, Tina & Darren Harris said…
Hay Angie.
Thank you so much for being a member of the Starlight group. we all have a lovely story about our child and there wish 's I would love to know if there are more children out there that have had there wish and to know where they have been.

I have Tyran next to me and I said to him "see this little boy ? His name is Sean and he was born on the same day as you and I think he looks like you and you both have the same Birthday. Tyran has the big's smile on his face. Tyran is very smart he tops most of his class.He also knows what is going to happen to him ( He has been hear before we say ) Tyran has friends but they don't know how he feels when it comes down to his DMD .

I would love for our boys to become best friends. and the same with us.
chat to you soon
At 3:25am on December 21, 2009, Tina & Darren Harris said…
Hi Angie.

Like I said Tyran has had a Starlight wish over hear in Australia. He went to the middle of Australia to see and touch Air's rock before he stop's the use of his legs (Tyran is now in his wheelchair 95% of the day. ) Tyran's dad and Grandad went with him.I wish now I went to but we have two outer kids so I stayed home with my mum.
Tyran is 10 this year and we were toled that Tyran had DMD 5 years ago. your son look's a bit like my son Tyran they have that cute face.( You know the one you just want to kiss....) Pleas fell free to look at my photos. When I read your page I did see that your son swam with the dolphins. This is why I ask was the swim a wish.?

Pleas join my group. And add me as one of your friends.I feel we have so much in common and you will think the same when you read my page.

Hope to chat soon Tina & Darren Harris.
At 7:14pm on December 18, 2009, Jamie M. said…
Hey Angie, I'm part of Canadian Families. You & I don't live too far apart from each other. I'm in Wallaceburg, Ont. which is near Chatham. My brother & dear friends of mine live up by Markham. A few years ago, my son & I were swimming in this great place for kids (can't remeber the name), water slides & all. In reading your comments, I really like what you have to say!! Hope to hear from you. Jamie M.
At 2:25pm on December 3, 2009, Steve Beaulieu said…
Thank -you for your interest Angie. I have been building a archive of photos and if you would like to give permission for the use of a photo of your son we will get it into the calender. Unfortunitly, we have had some setbacks and I have not been able to find the time to get the project off the ground. I hope to do it sometime in the future. For now I would like to build an archive of photos to use for the project. I would like the calender to be an annual event and perhaps grow into more. For now I will just keep collecting pics.

Take care

Steve Beaulieu

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