Hello, I read your reply about doing PGD. Can you give me your opinion on it. We went and talked to a dr and it is going to cost around $25,000. It is crazy! Would love to hear your input. I am not a carrier but I have a 15% chance to have another child with MD. Talk to you soon.
I have a 3 yr old son with DMD and live in Cincinnati as well. In Madeira, were do you live?. Would love to meet you and Brody!
Leslie
At 12:32pm on October 24, 2008, James Poysky said…
Coach Wulf is on board for introducing you guys in-stadium. However, it sounds like we are kind of flying by the seat of our pants, so you might have to be flexible and/or wing it in front of the crowd. Might want to think of a couple of sentences of thanks/motivation/asking for donations ahead of time in case you are put on the spot. I sent him an email and cc'd your brody7 email account on it requesting that he contact us about when/where you guys are supposed to be. I'll pass any info along to you as it becomes available.
I've been thinking about you too :-). Things are going good, how about you? I have been looking for you on the site and I was so glad to see you on. I love all of your pictures, your boys are so adorable :-). Tonya
Just read your comment on more kids, sorry for your loss of the two triplets, as you so rightly say, not many will understand our wanting more kids.
Today a sarcastic comment was passed about the fact we are having our 4th, "are you not aware of global warming?" I now just ignore the abuse from the uninformed. I just think how limited their pathetic lives are, these children have enriched our lives and we for the first time in our lives now actually live. Each day is precious and we do many special things.
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Tamara
I have a 3 yr old son with DMD and live in Cincinnati as well. In Madeira, were do you live?. Would love to meet you and Brody!
Leslie
Thanks for you help! Go team! etc.
I've been thinking about you too :-). Things are going good, how about you? I have been looking for you on the site and I was so glad to see you on. I love all of your pictures, your boys are so adorable :-). Tonya
Just read your comment on more kids, sorry for your loss of the two triplets, as you so rightly say, not many will understand our wanting more kids.
Today a sarcastic comment was passed about the fact we are having our 4th, "are you not aware of global warming?" I now just ignore the abuse from the uninformed. I just think how limited their pathetic lives are, these children have enriched our lives and we for the first time in our lives now actually live. Each day is precious and we do many special things.
Take care and well done.
Colin